Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
EnteroLab Testing
Goto page 1, 2, 3  Next
 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options
 View previous topic :: View next topic  

Have you ordered any tests from EnteroLab?
Yes, and the test results were definitely helpful for my recovery program.
88%
 88%  [ 48 ]
Yes, but I feel that the tests were a waste of money.
1%
 1%  [ 1 ]
Yes, but I either haven't had time yet to determine whether or not the test results will be helpful, or I'm not sure for some other reason.
3%
 3%  [ 2 ]
No, I haven't ordered any tests from EnteroLab yet, but I intend to order some tests in the near future.
1%
 1%  [ 1 ]
No, I haven't ordered any tests from EnteroLab, and I don't intend to order any from them.
3%
 3%  [ 2 ]
Total Votes : 54

Author Message
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30710
User's local time:
2017 Nov 19 - 3:34 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Dec 02, 2014 7:31 pm    Post subject: EnteroLab Testing Reply with quote

Hi All,

Another member has asked for an estimate of how many of us use EnteroLab testing. So here's a short poll that will hopefully establish an estimate of what percentage of members use EnteroLab testing, and whether or not those who ordered tests feel that the results have been helpful.

Thanks,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Deb
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 20 Nov 2010

Posts: 1548
User's local time:
2017 Nov 19 - 3:34 PM


Food Intolerances : Gluten, still determining others
Location: Minnesota

PostPosted: Wed Dec 03, 2014 5:16 pm    Post subject: Reply with quote

It was helpful for me. I tested VERY high for gluten and high for dairy, soy and eggs. I was able to eliminate gluten and go into remission. Deb
Back to top
megamoxie
Adélie Penguin
Adélie Penguin


Joined: 29 Sep 2014

Posts: 79
User's local time:
2017 Nov 19 - 4:34 PM


Food Intolerances : Shellfish, dairy, peppers, HFCS, pork, beef, gluten, oats, sesame seeds, tuna, chocolate, artificial sweeteners
Location: Connecticut

PostPosted: Wed Dec 03, 2014 5:35 pm    Post subject: Reply with quote

It has been helpful for me. It confirmed foods that I knew were problems, I learned about sensitivities of which I was unaware, and I feel better now that I have eliminated all items to which I react. I feel that the tests were expensive, but worth every penny.
_________________
Courage is the price that life exacts for granting peace; the soul that knows it not, knows no release from little things. - Amelia Earhart
Back to top
LindyLou
Adélie Penguin
Adélie Penguin


Joined: 31 May 2011

Posts: 182
User's local time:
2017 Nov 19 - 4:34 PM


Food Intolerances : Gluten - So Far
Location: New Baltimore, MI

PostPosted: Wed Dec 03, 2014 6:46 pm    Post subject: Reply with quote

The test was not helpful at all for me. It showed no reactivity to dairy or soy and gluten was within range. That said, I do not know if I have an IGA insufficiency or not but I definitly have reactions to all three.
Back to top
UkuleleLady
Gentoo Penguin
Gentoo Penguin


Joined: 23 Jun 2013

Posts: 378
User's local time:
2017 Nov 19 - 3:34 PM


Food Intolerances : Gluten, Dairy, Soy, Peanut, Eggs, Chicken, Tuna, Rice, Oat, Almond, Ginger, Garlic, Pepper, Potato...more
Location: Texas

PostPosted: Thu Dec 04, 2014 8:43 am    Post subject: Reply with quote

megamoxie wrote:
It has been helpful for me. It confirmed foods that I knew were problems, I learned about sensitivities of which I was unaware, and I feel better now that I have eliminated all items to which I react. I feel that the tests were expensive, but worth every penny.


Exactly my sentiments. But I understand it must be frustrating for those who have the Iga deficiency.
_________________
If you want others to be happy, practice compassion. If you want to be happy, practice compassion. ~The Dalai Lama
Back to top
kd025
Adélie Penguin
Adélie Penguin


Joined: 08 Oct 2013

Posts: 81
User's local time:
2017 Nov 19 - 3:34 PM




PostPosted: Thu Dec 04, 2014 9:31 am    Post subject: Reply with quote

I haven't ordered the tests mostly because I started tinkering with my diet long before I really knew what was going on. And I spent about $200 already on an IgG food intolerance test through my doctor's office (again, before I knew anything about food intolerance testing). Had I started with a clean slate, I don't know what I would've done. Testing is definitely not cheap, so I might have still done the elimination diet anyway. :)

Kristen
Back to top
ldubois7
Rockhopper Penguin
Rockhopper Penguin


Joined: 19 Feb 2013

Posts: 1269
User's local time:
2017 Nov 19 - 3:34 PM


Food Intolerances : Gluten, dairy, eggs, soy
Location: Pennsylvania

PostPosted: Fri Dec 05, 2014 5:04 am    Post subject: Reply with quote

I would have never realized all the intolerances I have without the test.

It was my first step towards recovery after many months of misery.
_________________
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
Back to top
kayare
Adélie Penguin
Adélie Penguin


Joined: 23 Oct 2011

Posts: 148
User's local time:
2017 Nov 19 - 3:34 PM


Food Intolerances : Gluten, eggs, soy, beef, corn, pork, tuna, peanuts, lentils, peas, tomatoes, still trying to determine others.
Location: Florida

PostPosted: Thu Dec 11, 2014 7:58 pm    Post subject: Reply with quote

The testing was a real eye-opener for me! I would have never suspected all of my intolerances. It was money well spent for me.

Kathy
Back to top
jmh
Adélie Penguin
Adélie Penguin


Joined: 05 Nov 2014

Posts: 67
User's local time:
2017 Nov 19 - 3:34 PM


Food Intolerances : Gluten Sensitivity
Location: Baton Rouge, LA

PostPosted: Wed Dec 17, 2014 4:10 pm    Post subject: Reply with quote

There wasn't a category for me ... I have submitted my specimen, but haven't received my results yet. Should come the week after New Year's. And I can't wait!

Judy
Back to top
Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 894
User's local time:
2017 Nov 19 - 9:34 PM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Wed Dec 17, 2014 4:49 pm    Post subject: Reply with quote

Hi,

Would the test give reliable results as to gluten, dairy, soy and eggs for us who have quit eating these four up to 1,5 years ago (gluten and dairy) and 2 months (eggs and soy) ?

I mean, it could certainly reveal other offenders than these four, but would it say anything about me being right to cut these four offenders?

My health is much better, but then again I'm on Entocort, so a test wouldn't become actual until I've come off Entocort, which will be in May, 2015.

Lilja
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30710
User's local time:
2017 Nov 19 - 3:34 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Dec 17, 2014 5:11 pm    Post subject: Reply with quote

Judy,

The third option was intended to cover situations such as yours:

Quote:
Yes, but I either haven't had time yet to determine whether or not the test results will be helpful, or I'm not sure for some other reason.


Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30710
User's local time:
2017 Nov 19 - 3:34 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Dec 17, 2014 5:52 pm    Post subject: Reply with quote

Lilja wrote:
Would the test give reliable results as to gluten, dairy, soy and eggs for us who have quit eating these four up to 1,5 years ago (gluten and dairy) and 2 months (eggs and soy) ?

I mean, it could certainly reveal other offenders than these four, but would it say anything about me being right to cut these four offenders?

My health is much better, but then again I'm on Entocort, so a test wouldn't become actual until I've come off Entocort, which will be in May, 2015.


The EnteroLab tests can reliably detect gluten antibodies for a least a year after gluten has been removed from the diet, and in most cases their test can still detect gluten antibodies up to about 2 years after gluten has been removed from the diet. But in order to detect gluten sensitivity after 2 years, you would have to have had an unusually high antibody level before you started avoiding gluten, or else you would have to have accidentally eaten small amounts of gluten occasionally, or your diet would have to be cross-contaminated with traces of gluten from unknown sources. You would be surprised how often this happens, though.

Just having a bag of wheat flour in the house is usually enough to just about guarantee diet cross-contamination. A couple of years ago (after I had been in remission for over 7 years), I sent a sample to EnteroLab and found that my anti-gliadin antibody level was 62 Shocked The only possible explanation that I can find for that was that someone else in the house was using wheat flour (even though they were very careful about it). The dust from flour goes everywhere when you handle it, or mix it in a recipe. Eating out occasionally (either at restaurants or at someone else's home) can also carry a very high risk of diet cross-contamination.

Anti-gliadin antibodies have a half-life of 120 days, so it takes them a long time to decay. Most other food antibodies have a half-life of approximately 6 days, so those antibodies decay much faster. The EnteroLab tests can usually reliably detect antibodies to most of these foods for up to 2 or 3 months after they have been withdrawn from the diet, and in some cases they can still detect them at 4 or 5 months after they have been removed from the diet. But by next May (after a total of 7 months have passed), it is unlikely that the tests would detect antibodies to those foods if you are following a strict diet. The tests might still work for you, but I wouldn't count on it.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Skyward
Adélie Penguin
Adélie Penguin


Joined: 22 Nov 2014

Posts: 58
User's local time:
2017 Nov 19 - 4:34 PM



Location: Indiana

PostPosted: Wed Dec 17, 2014 8:14 pm    Post subject: Reply with quote

I had wanted to ask about that- it sounds like time is of the essence here because I've been eating a very limited diet and hoping to get the testing done- but I couldn't figure out how they could know you react to a food if you aren't eating it. I was wondering if I was going to have to go on a last blast binge or something.
Back to top
mcnomore
Gentoo Penguin
Gentoo Penguin


Joined: 05 Apr 2010

Posts: 401
User's local time:
2017 Nov 19 - 1:34 PM


Food Intolerances : not sure yet
Location: Berkeley, California

PostPosted: Tue Dec 23, 2014 2:59 pm    Post subject: Reply with quote

My allergist was the first person to suspect that I have a gluten problem. I don't have celiac however. She had me get a blood test each month after I began a gf diet until the test showed that I was not eating gluten. My insurance (Medicare) covered it. That test was the following:

gliadin IgG/igA Ab Prof, EIA
deamidated gliadin Abs, IgA
_________________
MC diagnosed 2007
Back to top
mcnomore
Gentoo Penguin
Gentoo Penguin


Joined: 05 Apr 2010

Posts: 401
User's local time:
2017 Nov 19 - 1:34 PM


Food Intolerances : not sure yet
Location: Berkeley, California

PostPosted: Tue Dec 23, 2014 3:04 pm    Post subject: Reply with quote

I asked Enterolab whether I should get certain tests given that I hadn't eat some foods ever or for a long time(just tell them how long) and they said the test would not be accurate so I should not spend the money. Guess they are very honest which is nice to know.
_________________
MC diagnosed 2007
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options All times are GMT - 6 Hours
Goto page 1, 2, 3  Next
Page 1 of 3

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright © 2005–2017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery