Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
EnteroLab Testing
Goto page Previous  1, 2, 3  Next
 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options
 View previous topic :: View next topic  

Have you ordered any tests from EnteroLab?
Yes, and the test results were definitely helpful for my recovery program.
88%
 88%  [ 48 ]
Yes, but I feel that the tests were a waste of money.
1%
 1%  [ 1 ]
Yes, but I either haven't had time yet to determine whether or not the test results will be helpful, or I'm not sure for some other reason.
3%
 3%  [ 2 ]
No, I haven't ordered any tests from EnteroLab yet, but I intend to order some tests in the near future.
1%
 1%  [ 1 ]
No, I haven't ordered any tests from EnteroLab, and I don't intend to order any from them.
3%
 3%  [ 2 ]
Total Votes : 54

Author Message
Massimo

unknown IP

Joined: 11 May 2014

Posts: 16
User's local time:
2017 Sep 24 - 9:46 AM



Location: France

PostPosted: Fri Jan 23, 2015 10:58 am    Post subject: Reply with quote

Dear all,

I've just gone off entocort 2 weeks ago. Is it ok for me to ask for a test from Enterolab or is it too soon ? I don't want to receive false negative as far as It will be very costly for me to do this test (especially sending from France) :(

Thanks :)

Max
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Jan 23, 2015 5:28 pm    Post subject: Reply with quote

Hi Max,

If you were using it for more than roughly 5 or 6 weeks, it might be too soon, depending on how high your antibody levels were before you started the Entocort. I apologize for such a wishy-washy answer, but if you had high antibody levels (which would probably be the case if you have been reacting for a long time, such as years), then it might not matter. If you had relatively low antibody levels though (which would probably be the case if you had only been reacting for a few months), then the Entocort might have suppressed your antibody levels enough that you might receive false negative results.

I can't recall offhand how long the lab recommends waiting if you have been using Entocort long enough to affect test results. Hopefully someone who has a better memory will see this and post the proper time recommendation.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Stephanie
Little Blue Penguin
Little Blue Penguin
Canada

Joined: 19 Jan 2015

Posts: 26
User's local time:
2017 Sep 24 - 1:46 AM


Food Intolerances : Gluten, Dairy
Location: Calgary, Alberta

PostPosted: Fri Jan 23, 2015 7:31 pm    Post subject: Reply with quote

If I was to order these test, I know I cannot eat gluten, but is a given that it will just come back with. Egg, soy and milk sensitivities? I have just heard that almost everyone will have sensitivities to these 4. I understand that I may have more sensitivities, so in that case it might be helpful, but has others done this test WITHOUT it coming back sensitive to milk egg, gluten or soy? Thanks!
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Jan 23, 2015 8:52 pm    Post subject: Reply with quote

Hi Stephanie,

We are all different, and not everyone tests positive to all of those foods. If you would like to review some test results for some of us, you can see those results at the following links:

Food Sensitivity Test Results For Names A–J

Food Sensitivity Test Results For Names K–Z

The first member on the first list, for example, tested negative to both gluten and dairy products, but positive to eggs and soy. That said, since so many of us are sensitive to those foods, if someone wants to try to achieve remission without investing in those lab tests, the safest bet is to cut all of those foods out of their diet, because if they fail to avoid a single food that causes them to react, they will not be able to stop reacting.

On the other hand, if they base their diet on their actual test results, then they only have to avoid the foods that show positive test results. That's why so many of us order the tests. It eliminates a lot of guesswork, in most cases.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Lucky8

unknown IP

Joined: 25 May 2011

Posts: 22
User's local time:
2017 Sep 24 - 2:46 AM




PostPosted: Sun Feb 08, 2015 10:24 am    Post subject: Reply with quote

I had to answer no because I am IGA deficient. I would have the tests if it were an option for me.
Back to top
carolm
Rockhopper Penguin
Rockhopper Penguin


Joined: 02 Sep 2011

Posts: 1001
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Enterolab: gluten, soy, dairy, eggs, pork. MRT- Reds: Cola. Yellows: Capsaicin, sorbic acid, ibuprofen, Blue #2, maple, cherry, peach, pineapple, grapefruit, plum, papaya, pear, beet, string beans, cucumber, green pea, lima bean, walnut, tea.
Location: Kansas City

PostPosted: Sun Feb 15, 2015 10:01 am    Post subject: Reply with quote

Now that I'm in remission and I look back at what it took to get here, the Enterolab tests were definitely helpful for me, mainly because I had test results to validate my diet changes and it reduced any moments of doubt. It also gave me the data to convince my family that the diet changes were 100% necessary. Those results and advice here pointed the way.

Carol
_________________
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Back to top
Stephanie
Little Blue Penguin
Little Blue Penguin
Canada

Joined: 19 Jan 2015

Posts: 26
User's local time:
2017 Sep 24 - 1:46 AM


Food Intolerances : Gluten, Dairy
Location: Calgary, Alberta

PostPosted: Sun Feb 15, 2015 10:22 am    Post subject: Reply with quote

Thanks Carol
Back to top
JFR
Rockhopper Penguin
Rockhopper Penguin


Joined: 30 Mar 2012

Posts: 1272
User's local time:
2017 Sep 24 - 3:46 AM


Food Intolerances : gluten, dairy, soy, eggs

PostPosted: Sun Feb 15, 2015 10:29 am    Post subject: Reply with quote

carolm wrote:
Now that I'm in remission and I look back at what it took to get here, the Enterolab tests were definitely helpful for me, mainly because I had test results to validate my diet changes and it reduced any moments of doubt. It also gave me the data to convince my family that the diet changes were 100% necessary. Those results and advice here pointed the way.

Carol


Funny you should mention the Enterolab testing as being validating. About a year ago my daughter-in-law was talking about all the people she knew who were now gluten free, without reason in her opinion. I mentioned my Enterolab results and she said, well that's completely different. I found the testing very helpful too but before I even got the results back I had eliminated gluten, dairy, soy and eggs. The testing helped validate what I discovered experientially. I was not at all surprised by the results because my body had already told me it was true. People tend to discount other people's experiences in favor of "objective" measurements, doctors included of course. I think we need a better balance between the objective signs and the subjective symptoms.

Jean
Back to top
Kimelizabeth



Joined: 13 Feb 2015

Posts: 18
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Gluten
Location: florida

PostPosted: Sat Apr 11, 2015 11:48 pm    Post subject: Reply with quote

ldubois7
With all of those food intolerance what to you actually eat on a daily basis?
_________________
Kim
GF, DF, Egg Free, Soy Free
Hashimotos Tyroiditis
MC with mixed features of CC and LC
MTHFR gene mutation
Back to top
jcml12
Little Blue Penguin
Little Blue Penguin
unknown IP

Joined: 24 Apr 2015

Posts: 33
User's local time:
2017 Sep 24 - 12:46 AM


Food Intolerances : gluten, dairy, soy, casein, grains, gums, sugar, corn
Location: PORTLAND, OR

PostPosted: Tue May 05, 2015 11:20 am    Post subject: Re: EnteroLab Testing Reply with quote

tex wrote:
Hi All,

Another member has asked for an estimate of how many of us use EnteroLab testing. So here's a short poll that will hopefully establish an estimate of what percentage of members use EnteroLab testing, and whether or not those who ordered tests feel that the results have been helpful.

Thanks,
Tex


Tex,
Can you please tell me what exactly I would want to ask to be tested for on the EnteroLab Test? I have not had this done and I know my insurance wont cover it but am willing to do the test to make sure I am not eating anything I am sensitive to. I am eating no grains, no gluten, no soy, no dairy and have not eaten red meat in over a year. I have fish, chicken, eggs, pork (lean) and turkey ok. There are veggis I cannot eat as I reacted when I first started this diet about 9 months ago. There are so many choices for tests I would like to know what you might recommend please? Thanks, Jan
_________________
Collagenous Colitis, Benign Cramp Fasciculations in lower legs, Thyroid and High Cholesterol
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue May 05, 2015 11:38 am    Post subject: Reply with quote

Hi Jan,

Except for those who are vegetarians or vegans, the most useful tests for most of us are the combination of Panels A1 and C1. A1 tests for antibodies to gluten, casein (dairy), soy, and eggs. C1 tests for antibodies to almonds, walnuts, cashews, beef, pork, chicken, tuna, rice, corn, oats, and white potato.

https://www.enterolab.com/StaticPages/TestInfo.aspx#PanelA1C1

You're very welcome,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Hopeful
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 08 Sep 2014

Posts: 227
User's local time:
2017 Sep 24 - 3:46 AM




PostPosted: Tue May 05, 2015 2:17 pm    Post subject: Reply with quote

I talked to someone at Enterolab just today to find out if it's too soon to be tested after stopping Entecort. She said there are 2 options. Wait 6 months after finishing pills or get a blood test for total secretory IgA. If IgA tests in the normal to high range, I'm good to go for getting the stool test. If not, it's best to wait for another 4-5 months to make sure the Entecort is out of my system. Keep in mind that I had been on it for 4 years - so make take time.

The logistics are also complicated since I live in NY state - no tests can be ordered from here. I have a friend in CT who has agreed to be my "dropbox" when the time comes. Hope it's sooner than later!
Chris
Back to top
HappyBird
Gentoo Penguin
Gentoo Penguin


Joined: 17 Sep 2015

Posts: 305
User's local time:
2017 Sep 24 - 8:46 AM


Food Intolerances : GF, DF, SF, LF.

PostPosted: Sat Sep 19, 2015 10:04 am    Post subject: Reply with quote

In the UK we have York Lab - I ordered an initial screening but haven't done it yet.

My allergies are well documented and well known. I wanted to do the careening but find it difficult to stab my finger for he initial test. I'm a bit if a baby Embarassed I want to do the USA test but it takes a great deal of organising to post hazardous waste to EntraLab in the USA. It's expensive too.
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Sep 19, 2015 11:12 am    Post subject: Reply with quote

Hi,

You're correct that it's a bit of trouble to ship a sample from the UK, but if you call or email EnteroLab, they will tell you exactly how to do it and which carrier to use to minimize the amount of effort required.

We have found that in general, the blood tests are pretty much useless for detecting the type of food sensitivities that we have in our intestines. For our purposes, only the IgA-based stool tests offered by EnteroLab are accurate and reliable.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
HappyBird
Gentoo Penguin
Gentoo Penguin


Joined: 17 Sep 2015

Posts: 305
User's local time:
2017 Sep 24 - 8:46 AM


Food Intolerances : GF, DF, SF, LF.

PostPosted: Thu Sep 24, 2015 12:01 pm    Post subject: Reply with quote

Hi Tex.....

I'm seriously considering sending a sample to EnteroLab, no matter how difficult.

I started the elimination diet a few days ago and stopped the Ketoprofen SR I was taking for arthritis. Things started well on my ten items until yesterday when I took a Ketoprofen SR and added (without thinking) apple purée to my diet. In the small hours of the morning I felt the first pangs of cramps but ignored it and woke up to WD which has persisted all day. It must be the Ketoprofen to blame but can't rule out the apple.

Anyway, my DP is reading your book and researching as much as possible for me. I an't concentrate and feel very listless at the moment. I'm keeping a food diary and trying to keep the fluids going. Is there a recommended list of foods to add fist?
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options All times are GMT - 6 Hours
Goto page Previous  1, 2, 3  Next
Page 2 of 3

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright © 2005–2017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery