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Fragile Stability is Better Than No Stability

 
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DJ
Gentoo Penguin
Gentoo Penguin


Joined: 01 Oct 2013

Posts: 472
User's local time:
2017 Oct 23 - 5:14 PM


Food Intolerances : gluten, dairy, eggs, soy, kidney beans (and most other legumes), nuts, especially almonds and peanuts, tapioca, xanthan gum, and chicken
Location: Upstate NY

PostPosted: Sun Feb 01, 2015 7:51 am    Post subject: Fragile Stability is Better Than No Stability Reply with quote

Hello All,
I would like to say hello to the people on this board who helped me more that I can say AND I would like to say hello to all new participants.

March will be the two-year mark since my Microscopic Colitis Flood. I was diagnosed and treated about three months later.

Dealing with permanent extreme dietary restrictions has been a challenge but it's working out. I now understand why Tex says that many MC'ers don't eat out. Restaurant staff are rarely trained or equipped to deal with our needs. They think they can accommodate us but it's usually not the case. I've found two places to eat out. The food is very plain but I'm fine with that. Plain food is better than diarrhea and being sick. One of the two locations is a local place and the other is Red Lobster in my location. The waitress either had some experience of her own or was very well trained. She told me that the cook could make salmon cooked in a clean frying pan with only water. They also had baked potatoes and plain veggies. I felt safe and I didn't have any issues after. On the rare occasion when I eat out, I carry my own "extras" such as cocktail sauce or margerine.

With my sensitivity list, baked goods are almost impossible. I bought expensive mixes and learned that I can't have xanthan gum or tapioca, so in the trash they went. I altered a GF recipe for bread and came up with a very heavy loaf that is free of all the foods I've eliminated. It's not great but I occasionally make crunchy toast with it. For the most part, I use tortilla chips and rice cakes in place of bread. Tuna salad with tortilla chips is a nice lunch. Hellmans has a canola mayonnaise that is free of many things. If you have an Aldi's store in your area, they have many nice GF products for a much lower price than other stores. They also have nitrate-free bacon and ham.

Homemade soup is a huge standby in my house. I make a stockpot of it every Sunday. I can't eat chicken or most legumes so my standbys are turkey, beef, and seafood soups. They freeze well and my husband and I bring them to work nearly daily.

Someone on this board mentioned that some people who can't eat legumes (soy, peanuts, garbonzo beans, kidney beans, etc.) can sometimes eat the kind of beans in canned baked beans (called small white beans). I eventually tried small white beans and I can eat them Very Happy They can be found as prepared baked beans or plain beans in cans where kidney beans and garbonzo beans are found in the market. I can eat tahini (pureed sesame seeds) so I make a great tasting hummus. It's really not much trouble and it's great with tortilla chips or rice crackers. My husband loves it with raw veggies but I can't eat raw veggies (maybe someday).

In my case, maintaining stability requires strict elimination of the foods I'm sensitive to. I spent decades with churning guts. Now, I often don't sense churning at all. I had forgotten what it feels like to have quiet intestines. I'll continue to learn to work around the sensitivities. It's worth it.

I would also like to share that my exhaustion lessens as time passes.

Thank you, everyone! red-haired girl
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JFR
Rockhopper Penguin
Rockhopper Penguin


Joined: 30 Mar 2012

Posts: 1280
User's local time:
2017 Oct 23 - 5:14 PM


Food Intolerances : gluten, dairy, soy, eggs

PostPosted: Sun Feb 01, 2015 8:02 am    Post subject: Reply with quote

Great work DJ. I completely agree, being scrupulous about what you eat is much better than being sick. I am glad things are going so well for you. After about 2 years I began to eat raw vegetables without any problems. Patience is a real asset. It may become possible for you too but if it doesn't you will still be doing well because you have such a good attitude about all of this. I tell myself, when I am tempted by something that I am not my cravings. It helps get me over the moment of temptation.

Jean
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DJ
Gentoo Penguin
Gentoo Penguin


Joined: 01 Oct 2013

Posts: 472
User's local time:
2017 Oct 23 - 5:14 PM


Food Intolerances : gluten, dairy, eggs, soy, kidney beans (and most other legumes), nuts, especially almonds and peanuts, tapioca, xanthan gum, and chicken
Location: Upstate NY

PostPosted: Sun Feb 01, 2015 9:30 am    Post subject: Reply with quote

Thanks Jean. I'd love to eat carrots and peppers with dip. My 2-year post-treatment mark is in June. I'll try again at that time. I am no longer tempted by the things I KNOW made me sick that I can never eat again. I'm over that hurdle.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30603
User's local time:
2017 Oct 23 - 4:14 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Feb 01, 2015 9:50 am    Post subject: Reply with quote

Hello DJ,

It's great to see an update from you, especially one that affirms that you are still doing well. Like Jean, I hope that some day soon your healing will reach the point where you will be able add salads and other options back into your diet.

Thank you for the update, and for sharing your insight into eating out.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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dfpowell
Gentoo Penguin
Gentoo Penguin


Joined: 03 Apr 2013

Posts: 486
User's local time:
2017 Oct 23 - 4:14 PM


Food Intolerances : Gluten Free
Location: Lakeville, Minnesota

PostPosted: Sun Feb 01, 2015 9:55 am    Post subject: Reply with quote

DJ,

Nice to hear from you! Thanks for the update, it's helpful for the newbies to read success stories.
_________________
Donna

Diagnosed with CC August 2011
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Blueberry
Gentoo Penguin
Gentoo Penguin
unknown IP

Joined: 22 Aug 2013

Posts: 360
User's local time:
2017 Oct 23 - 4:14 PM


Food Intolerances : Pork, olives and olive oil, pumpkin and other gourds

PostPosted: Sun Feb 01, 2015 3:59 pm    Post subject: Reply with quote

Thanks for the write up, and glad to read things are going well with the gut and improving exhaustion! Hope you continue to see further progress strictly avoiding legumes.

That's been my problem for the last few years mainly, being overly fatigued and exhausted. The gut has been doing well most of the time. Every once in awhile it would mysteriously flare, but that has been becoming less and less, thankfully! I have a safe diet that keeps me eating home made food most days. Of late I've been strictly eating grass fed meats. I thought if my problem was caused by soy, and with soy being fed to most live stock, possibly soy proteins are showing up in eggs, dairy and meats. Rather nicely but since doing that the gut has improved further and more importantly I have energy! Something else could be going on. Trying to cross off all the variables takes time, but it's nice not being so tired all the time.
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DJ
Gentoo Penguin
Gentoo Penguin


Joined: 01 Oct 2013

Posts: 472
User's local time:
2017 Oct 23 - 5:14 PM


Food Intolerances : gluten, dairy, eggs, soy, kidney beans (and most other legumes), nuts, especially almonds and peanuts, tapioca, xanthan gum, and chicken
Location: Upstate NY

PostPosted: Mon Feb 02, 2015 6:17 am    Post subject: Reply with quote

Hi Tex! I hope you are doing well. Things are slowly going in the right direction. I do eat baby lettuce with raw onions and tomatoes and I'm very happy about that. My next step will be raw carrots, peppers, celery, cucumbers, radishes, and other more common types of lettuce but I'm not there yet. One of the great things that came of this M/C problem is that my husband is nearly GF now and has experienced a much-needed 35 pound weight loss Very Happy
During the early stages of M/C it was all I could do to hold a job. Now, I'm coming to life a little bit. It was helpful to hear Polly and others say that it takes some people quite a while to regain their stamina. I'm one of those people and it is returning a little at a time.
Hi Donna, I agree. The success stories of others, along with constant reminders to completely eliminate gluten helped me so much. I can't tolerate trace gluten.
Hi Blueberry, I agree that it's best to get rid of whatever you think the problem is. You can always try adding new things along the way but FIRST you have to find a point of stability. Keep up the good work. I'm completely soy-free too. I also wonder if my soy problem is the reason I can't eat chicken or eggs.
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Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 864
User's local time:
2017 Oct 23 - 4:14 PM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Mon Feb 02, 2015 6:29 pm    Post subject: Reply with quote

Hi, D.J. Thanks for the update. It's wonderful to hear that you're doing so well! Posts like this are encouraging for the newbies. We all know how discouraging this journey is when we start out. I guess I'm still a newbie since I'm 1.5 years post diagnosis. Smile I was thinking the other day how nice it would be to be able to eat a fresh tomato...you give me hope!

Marcia
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DJ
Gentoo Penguin
Gentoo Penguin


Joined: 01 Oct 2013

Posts: 472
User's local time:
2017 Oct 23 - 5:14 PM


Food Intolerances : gluten, dairy, eggs, soy, kidney beans (and most other legumes), nuts, especially almonds and peanuts, tapioca, xanthan gum, and chicken
Location: Upstate NY

PostPosted: Tue Feb 03, 2015 5:45 am    Post subject: Reply with quote

Hi Marcia, It's different for all of us, so it's a detective game. I added raw tomatoes quite a while ago without a problem. Can
you eat cooked tomatoes? I can eat essentially all cooked veggies. I can eat a shelf-stable pickle (because they are cooked) but not a refrigerated pickle, like Claussen's, because they are not cooked.
I posted good news about white beans but I may have spoken too soon. I plan to post on the main discussion board about that.
I hope you can eventually add tomatoes!
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CathyMe.
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 27 Feb 2012

Posts: 584
User's local time:
2017 Oct 23 - 4:14 PM




PostPosted: Tue Feb 03, 2015 6:03 am    Post subject: Reply with quote

DJ wrote:
Thanks Jean. I'd love to eat carrots and peppers with dip. My 2-year post-treatment mark is in June. I'll try again at that time. I am no longer tempted by the things I KNOW made me sick that I can never eat again. I'm over that hurdle.


So glad you're doing well DJ. I too am at a good point and so agree with your statement above!
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Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 864
User's local time:
2017 Oct 23 - 4:14 PM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Tue Feb 03, 2015 6:49 pm    Post subject: Reply with quote

Hi, D. J. I don't know if I can tolerate cooked tomatoes. I haven't tried them. I really haven't tried a lot of different foods because I don't want to rock the boat. The six weeks of horrible D is all too fresh in my mind yet. I mainly eat cooked broccoli, carrots, asparagus, zucchini and beets. I tried cooked cauliflower which I always ate raw without a problem but now it gives me gas.

Marcia
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7138
User's local time:
2017 Oct 24 - 8:14 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Wed Feb 04, 2015 2:19 pm    Post subject: Reply with quote

Remember one of my mottos...... It's about progress, not perfection.

Hang in there, you are seeing the results of the hard work done thus far......
And... You are not alone in this marathon.
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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