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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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jcml12
Little Blue Penguin
Little Blue Penguin
unknown IP

Joined: 24 Apr 2015

Posts: 33
User's local time:
2017 Dec 17 - 9:41 AM


Food Intolerances : gluten, dairy, soy, casein, grains, gums, sugar, corn
Location: PORTLAND, OR

PostPosted: Mon Jan 18, 2016 9:06 am    Post subject: CHECKING IN Reply with quote

Hi everyone! Its been awhile since I logged on (not on purpose, just busy) and I wanted to report how I was doing. I was on Budesonide 3mg for 1 year and then started weaning slowly to every other day for a few weeks, then every two days for a few weeks etc. I have not been taking anything for 2 months now and no problems at all. My diet (new diet as of diagnoses 2 yrs ago) will never change and I think that is what is important for people to remember it has to be the new norm. I am totally grain free, dairy free, soy free and can honestly say I feel great all around. For Tex, I purchased your book for my Naturopath (he is the head of the Sibo center here in Portland, OR) and he learned so much and really appreciated your insight on things and said you were pretty spot on. I explained to him from what I learned here on the sight that the longer you are on the Budesonide and the longer you take to wean off will give better results and I am living proof of that. Again the diet can never change. I will keep coming on line to read and I just want you all to know this site, your insight and all your words of encourgement and what worked for you helped me greatly! God Bless You All!
Thank you!
Jan
_________________
Collagenous Colitis, Benign Cramp Fasciculations in lower legs, Thyroid and High Cholesterol
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30859
User's local time:
2017 Dec 17 - 11:41 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jan 18, 2016 10:51 am    Post subject: Reply with quote

Hi Jan,

Thank you for posting an update. It's great to see that you are doing so well.

And thank you for the kind words. It's encouraging that you have found an open-minded doctor who is willing to actually listen to what his patients have to say. Now that you understand how to control MC you should be able to keep your symptoms under control forever.

Thank you for sharing an inspiring update.

Tex

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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twirlitgirl
Adélie Penguin
Adélie Penguin


Joined: 21 Aug 2014

Posts: 180
User's local time:
2017 Dec 17 - 11:41 AM


Food Intolerances : gluten,dairy,corn,soy, nightshades these are the ones known
Location: Canada

PostPosted: Mon Jan 18, 2016 12:44 pm    Post subject: Reply with quote

Hi Jan,
wishing you continued success in your journey, and thank-you for your inspiring words and encouragement. take care red-haired girl
_________________
diagnosed with LC by biopsy
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
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Pampe222

United States

Joined: 09 Jan 2016

Posts: 1
User's local time:
2017 Dec 17 - 11:41 AM




PostPosted: Wed Feb 10, 2016 6:14 pm    Post subject: Frustrated. Tired of living from bathroom to bathroom Reply with quote

Hi. I was D free for @10 years then bronchial infection and anti biotics...... There is where my problem began. I have had D for 8 months . Trying to go gluten free, no fresh fruit, dairy, raw veggies, or salad. Really struggling to figure out what to eat. I know I'm not doing anything right. I guess I need to be more serious on getting better. What worked for me last time is not this time. Very frustrated
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30859
User's local time:
2017 Dec 17 - 11:41 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Feb 10, 2016 6:48 pm    Post subject: Reply with quote

Hi,

Welcome to our Internet family. I'm sorry that you're having a relapse. Many antibiotics can be very tough on MC patients. Dealing with this disease can be mighty tricky at times. Have you looked at the Diet Guidelines that can be downloaded from the Microscopic Colitis Foundation website? Some of the suggestion in those guidelines may give you some ideas on diet changes you can make that may help to get you back to remission. Here's a link to the download page:

http://www.microscopiccolitisfoundation.org/downloads.html

And if you have any questions after reading those guidelines, please don't hesitate to post your questions here. We'll try to help in any way we can. Some of us develop additional food sensitivities under certain conditions, so that could be why your diet changes are not bringing remission. And traces in our diet of gluten or other food sensitivities (such as dairy or soy) can prevent remission, also. I recently became sensitive to soy after years of remission. My soy antibody test was negative roughly 10 years ago.

Again, welcome aboard, and please feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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