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Today I started Budesonide
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Adelaide
Adélie Penguin
Adélie Penguin


Joined: 14 Dec 2015

Posts: 169
User's local time:
2017 Nov 20 - 3:37 PM


Food Intolerances : Gluten
Location: South Australia

PostPosted: Thu Feb 11, 2016 5:28 pm    Post subject: Today I started Budesonide Reply with quote

A couple of hours ago I took my first Budesonide capsules. I hate taking medication and steroids scare me but I have been reassured by what I have read on here that many have had positive results from this medication. I am aware that this is the time to really pay attention to my diet and to work out my intolerances.

I am taking Vitamin D but do I have to do anything else to keep my Calcium levels up as I am not eating dairy? I am concerned that taking steroids can result in brittle bones.
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Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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Gabes-Apg
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Joined: 21 Dec 2009

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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Feb 11, 2016 5:45 pm    Post subject: Reply with quote

Linda
this thread discussing calcium should answer the question

http://www.perskyfarms.com/phpBB2/viewtopic.php...highlight=calcium


NB: I have not eaten Dairy for over 6 years, do not supplement with calcium, and do not have any calcium deficiency issues
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Feb 11, 2016 5:47 pm    Post subject: Reply with quote

out of interest - how much did it cost?
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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Adelaide
Adélie Penguin
Adélie Penguin


Joined: 14 Dec 2015

Posts: 169
User's local time:
2017 Nov 20 - 3:37 PM


Food Intolerances : Gluten
Location: South Australia

PostPosted: Thu Feb 11, 2016 6:37 pm    Post subject: Reply with quote

Just read a little of that thread. Will read more later. I forgot the bone broth...that should help. As my IgG testing came back with me reacting to almonds and cashews I am not game to have almond milk.

The cost was $133 for 90 capsules and I should get around $37 back from Medibank Private. So that will last one month and then next month I have to cut down to two capsules a day and then the next month one capsule a day. So not as bad as some in the USA are paying.
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Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Feb 11, 2016 6:52 pm    Post subject: Reply with quote

I have a bit of rice milk in the rice protein.

The cost was not as much as I thought, albiet in doing the comparison the additional cost of my MC eating plan is cheaper than budesonide
(sometimes you need a reminder of why we do what we do!)
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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Adelaide
Adélie Penguin
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Food Intolerances : Gluten
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PostPosted: Fri Feb 12, 2016 12:16 am    Post subject: Reply with quote

That is true Gabes and really who wants to be on steroids permanently. Diet is a better way even if it is a pain in the proverbial sometimes bouncing with joy
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Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Fri Feb 12, 2016 1:02 pm    Post subject: Reply with quote

Linda
we all have to do, what we need to do....

everyone's journey is different - the endpoint is similar - wellness, living life with minimal symptoms.
flower smiley
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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Adelaide
Adélie Penguin
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Food Intolerances : Gluten
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PostPosted: Fri Feb 12, 2016 3:54 pm    Post subject: Reply with quote

Exactly Gabes! My GI doctor the other day said something about the symptoms being a nuisance. I replied that it is more than a nuisance, it is what stops you living your life and doing the things you want to do. He is very nice and I do think he saw my point. We really just want the freedom to live our lives and as you said we just have to do what we need to do.
dancing penguins
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Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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Adelaide
Adélie Penguin
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2017 Nov 20 - 3:37 PM


Food Intolerances : Gluten
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PostPosted: Sun Feb 14, 2016 3:31 pm    Post subject: Reply with quote

I am now on day 4 of Budesonide. Yesterday I started feeling a bit dizzy, tightness in the head that could turn into a headache but it hasn't as yet, some tingling in my face and feeling a bit anxious. Has this been what other have experienced and is it likely to get better or worse?
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Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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tex
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Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Feb 14, 2016 4:46 pm    Post subject: Reply with quote

Linda,

Those are neurological side effects of budesonide. It could mean that you are allergic to budesonide or one of the inactive ingredients. Most people do not experience such side effects, but some people cannot tolerate the drug because of them.

Those side effects might diminish with time, but they could just as easily become worse. Some doctors recommend reducing the dose in such a situation to see if the drug can be tolerated at a lower dose, but in most cases, anytime neurological symptoms are caused by a medication it's almost always best to stop using it unless the use of the drug is critical (as in the case of an antibiotic used to control a life-threatening infection).

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Adelaide
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Joined: 14 Dec 2015

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2017 Nov 20 - 3:37 PM


Food Intolerances : Gluten
Location: South Australia

PostPosted: Sun Feb 14, 2016 9:42 pm    Post subject: Reply with quote

I am feeling a bit better today Tex. Still feel a little tense though. Hopefully these symptoms will diminish. Yesterday I took the medication and then didn't eat for a few hours so perhaps I am better to have something to eat with the medication. The doctor said the medication may bring some changes in mood and that I may have weight gain.
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Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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tex
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Joined: 24 May 2005

Posts: 30710
User's local time:
2017 Nov 20 - 12:07 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Feb 14, 2016 9:58 pm    Post subject: Reply with quote

Linda,

That sounds better. Yes, it might become activated sooner if taken on an empty stomach.

It's somewhat common for budesonide to cause mood changes and hyperactivity issues which can sometimes interfere with sleep. It can also boost the appetite. Some members have even described house cleaning marathons in order to use up the excess energy — they just felt inspired to keep working.

Those symptoms are usually not a significant problem. The symptoms to look out for are blurred vision or tunnel vision, balance issues, dizziness, etc. Those can be signs of a serious problem with the way the drug is affecting the body. If you find that you keep running into walls or door frames, or you seem to have trouble focusing your eyes, or you feel as though you want to crawl out of your skin, then it's probably time to stop taking it.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Adelaide
Adélie Penguin
Adélie Penguin


Joined: 14 Dec 2015

Posts: 169
User's local time:
2017 Nov 20 - 3:37 PM


Food Intolerances : Gluten
Location: South Australia

PostPosted: Mon Feb 15, 2016 2:04 am    Post subject: Reply with quote

Thanks for that Tex. If I run into just one wall or door frame I will definitely be rethinking this medication. I have been eating a bit so I will have to watch that. Not inspired to do house cleaning yet though
cleantoilet

Thank you again Very Happy
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Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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Adelaide
Adélie Penguin
Adélie Penguin


Joined: 14 Dec 2015

Posts: 169
User's local time:
2017 Nov 20 - 3:37 PM


Food Intolerances : Gluten
Location: South Australia

PostPosted: Tue Feb 16, 2016 11:29 pm    Post subject: Reply with quote

Thankfully I have not walked into any door frames or walls yet Very Happy In fact I am feeling a whole lot better today. Yesterday I felt like I had low blood sugar and even eating some protein didn't help. Today I had my medication about five minutes before breakfast and I think that helped with minimising the side effects. Either that or I am getting used to it. However my stomach is gurgling even more than normal. Would there be any reason for that?
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Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Wed Feb 17, 2016 12:08 am    Post subject: Reply with quote

that is good news that you are feeling better and figuring out timing and what works best.

day at a time.... and a good motto is - its about progress not perfection!
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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