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Update - Now Seven Months in Remission!

 
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ant
Rockhopper Penguin
Rockhopper Penguin


Joined: 28 Jun 2009

Posts: 1676
User's local time:
2017 Oct 22 - 12:36 PM


Food Intolerances : Gluten, Diary, Soy, Corn, Eggs, Peanuts and other legumes, nightshades (e.g. tomatoes and potatoes). DX Osteopenia. Suspect Celiac - Genes Type: DQ2/DQ8

PostPosted: Tue Mar 15, 2016 9:20 am    Post subject: Update - Now Seven Months in Remission! Reply with quote

Dear Tex and all Potty People,

I last updated in August after being hospitalized with Vestibular Neuritis. A course of Prednisone to treated the Neuritis also seemed to have knocked my MC into remission (together with continued diet). Since then I have not had to take Entocort. Very Happy

In the last seven months, I have had a couple of short (one day maximum) flares when I obviously had consumed some gluten, dairy, soy etc. But otherwise in the clear.

I have even started to try slowly to reintroduce some foods back into my diet. I find I can eat a little goats cheese without problem. I also seem to be able handle corn chips and possibly chickpeas. My next test will be other legumes (but not soy). I also plan to test nightshades and finally eggs. But I am doing this gradually one food at a time.

So..........after having multiple food intolerances for a number of years, and a number of failed attempts to taper off Entocort it looks like a have really reached a stage of long term remission (x fingers hope I am not tempting fate by writing this).

In the Chinese Year of the Monkey have a finally caught that pesky, naughty MC monkey? monkey Without PP's help and guidance I would not have been close to doing that.

Best wishes to all on the long MC journey and the wonderful people here who give so much of their time, wisdom, guidance and compassion. Ant ant ant
_________________
----------------------------------------
"Softly, softly catchee monkey".....
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Oct 21 - 10:36 PM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Tue Mar 15, 2016 12:16 pm    Post subject: Reply with quote

Thanks for the update Ant! Good to see people feeling better....
_________________
Vanessa
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terre
Gentoo Penguin
Gentoo Penguin
unknown IP

Joined: 08 Jul 2013

Posts: 469
User's local time:
2017 Oct 21 - 10:36 PM




PostPosted: Tue Mar 15, 2016 1:16 pm    Post subject: Reply with quote

How encouraging....thank you for posting! Continued success!!!

Terre
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 10:36 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Mar 15, 2016 8:23 pm    Post subject: Reply with quote

Ant,

That's super news! We had another member, a number of years ago, who also couldn't achieve remission despite all his hard work with diet control. He finally tried a short course of prednisone and it seemed to shock his immune system back to reality and after that he too enjoyed stable remission. I've mentioned this to others before, but as far as I'm aware no one else has ever tried it, until now. A link to his story is below, in case anyone is interested.

Bobs Prednisone -> Entocort

Thank you so much for sharing such an encouraging update with us. I can't believe it you finally caught that monkey. thumbs up

Kudos to you.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7136
User's local time:
2017 Oct 22 - 2:36 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Wed Mar 16, 2016 1:08 am    Post subject: Reply with quote

Fantastic, Super Dooper News!!

that has made my day today to read your update.

hope things with the building project are going well and there is not too much stress in your life

take care -
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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ant
Rockhopper Penguin
Rockhopper Penguin


Joined: 28 Jun 2009

Posts: 1676
User's local time:
2017 Oct 22 - 12:36 PM


Food Intolerances : Gluten, Diary, Soy, Corn, Eggs, Peanuts and other legumes, nightshades (e.g. tomatoes and potatoes). DX Osteopenia. Suspect Celiac - Genes Type: DQ2/DQ8

PostPosted: Wed Mar 16, 2016 9:32 am    Post subject: Reply with quote

Dear Venessa and Terre,

Thanks for your comments.

"You can get your life back" is the hope and reality, even if it takes longer than expected. Of course the diet restriction and changed lifestyle will remain, but that is not so bad compared with MC before it is tamed.

Dear Tex,

Thanks for the link. Unless I have miss-read, Bob successfully used Prednisone to get into remission, but he still occasionally takes Entocort when he needs to stop a flare. I am hoping to stay fully off it. The common thread seems to be that in both cases Prednisone made a step change that seems to have lasted.

Dear Gabes,

Hope things are well with you. The building project is completed although still have one or to minor things to fix (like water pressure). So less stress.

Best wishes, Ant
_________________
----------------------------------------
"Softly, softly catchee monkey".....
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 10:36 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Mar 16, 2016 12:20 pm    Post subject: Reply with quote

Ant,

Note that Bob's post is almost 10 years old now. He wrote that post less than a month after he had reached remission, so he surely had a fair amount of healing remaining to be done. I'll bet that he hasn't needed any Entocort in a long time (but that's just a guess, of course).

Yes, my point was that prednisone can sometimes shock the immune system sufficiently to "persuade" it to straighten out and fly right.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 864
User's local time:
2017 Oct 21 - 10:36 PM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Thu Mar 17, 2016 4:33 pm    Post subject: Reply with quote

Good for you, Ant! I love to read the success stories!
_________________
Marcia
------------
My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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Martha
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Oct 2010

Posts: 1074
User's local time:
2017 Oct 21 - 10:36 PM


Food Intolerances : gluten, dairy, soy
Location: Dallas, Texas

PostPosted: Fri Mar 18, 2016 10:59 am    Post subject: Reply with quote

Dear Ant,

I'm so glad that you are feeling better, and able to add some foods back into your diet. Time and persistence (and prednisone!) paid off.

My husband and I are planning another trip to Thailand for Christmas. Last time we were there, we went to a resort near Monkey Island that is run by a French couple who are quite aware of gluten-free issues, and I was able to eat there safely. Interestingly, the only ones who got sick were my husband and son, who ate something from a street vendor. At my son's house, I don't worry, because he is very aware of my dietary needs, and cooks accordingly. My son lives in Bangkok.

Again, I'm happy for your good news!

Martha
_________________
Martha
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DebE13
Rockhopper Penguin
Rockhopper Penguin


Joined: 27 Nov 2011

Posts: 1586
User's local time:
2017 Oct 21 - 10:36 PM


Food Intolerances : Gluten, casein, soy, eggs
Location: Wisconsin

PostPosted: Fri Mar 18, 2016 6:08 pm    Post subject: Reply with quote

Great news Ant! It's good to hear you're doing well!
_________________
Deb

"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson

2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
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DJ
Gentoo Penguin
Gentoo Penguin


Joined: 01 Oct 2013

Posts: 472
User's local time:
2017 Oct 21 - 11:36 PM


Food Intolerances : gluten, dairy, eggs, soy, kidney beans (and most other legumes), nuts, especially almonds and peanuts, tapioca, xanthan gum, and chicken
Location: Upstate NY

PostPosted: Sat Mar 19, 2016 11:25 am    Post subject: Reply with quote

Great news! Thanks for the update!!
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Leah
King Penguin
King Penguin
United States

Joined: 02 Feb 2012

Posts: 2527
User's local time:
2017 Oct 21 - 8:36 PM


Food Intolerances : gluten, dairy, coffee, tea,fruits..... IgA deficient, so I can't be tested
Location: San Francisco Bay Area

PostPosted: Sun Mar 20, 2016 1:38 pm    Post subject: Reply with quote

Yay!
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humbird753
Rockhopper Penguin
Rockhopper Penguin


Joined: 28 Nov 2011

Posts: 945
User's local time:
2017 Oct 21 - 10:36 PM


Food Intolerances : Gluten, Casein
Location: Wisconsin

PostPosted: Sun Mar 20, 2016 9:01 pm    Post subject: Reply with quote

Congratulations, Ant!!! I know it's been a long journey for you (as it can and often is for all of us). I am happy to hear you are feeling much better. I pray you continue to remain in remission.

Paula
_________________
Paula

"You'll never know how strong you are until being strong is the only choice you have."

"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
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