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MICROSCOPIC COLITIS SUPPORT
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 552
User's local time:
2017 Jun 27 - 9:50 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Sat Aug 13, 2016 8:20 am    Post subject: Never Give Up! Reply with quote

Hey Guys,

Just wanted to post an update on my healing journey thus far.....

I was diagnosed in Feb. 2014 with CC but looking back had symptoms that came and went many years before that. I truly believe that stress was a major factor in triggering my MC to come full force. By the time the diagnosis came, making the necessary lifestyle changes had a major impact on my already haywire nervous system. Looking back at my first post brings a dark feeling because I remember how lost, hopeless, and sick I felt. My world closed in on me. However, with the gentle guiding hands of our amazing family on this board I was able to integrate the necessary changes.

One thing I've learned in dealing with a disease like this, you really learn a lot about yourself. I knew that I needed to quit having this picture of myself in my mind of being sick. I also knew I could not do a full elimination diet. For me, it would be too stressful only to add one item or ingredient every three days keeping a journal. I cut out all of the major triggers (gluten, dairy, soy, and egg or the 4 horseman) and let go of everything else. I turned inward and did A LOT of work there talking to my other self and being my own best friend. A turning point did come when I detached myself from my symptoms. I felt so sick most days, I had to get real comfortable with the idea of death. I know this sounds dramatic but hey, I'm speaking from the heart......

So after 2 years of doing everything in my power to eliminate as much stress, toxicity, and god knows what from my world it looked like this was as good as it was gonna get. I still had WD around hormonal times off and on. I had fatigue, insomnia, menstrual irregularities, heart palpitations when resting at night, muscle weakness, skipped heartbeats throughout most days, hair loss, burning behind my breast plate when starting to eat, swollen lymph nodes, times when I couldn't take a full breath ( not anxiety but a sort of "air hunger" ), waking up in the night gasping for breath, eczema, throat swelling, burning stomach at night, numbness and tingling in left outer thigh (on face and toes as well), a feeling of "if I go to sleep I'm not going to wake up." Again, Not Anxiety, as I was always very relaxed when these things came and went. I just had a slew of weird symptoms that were present. I did a lot of accepting of them, welcoming them in for a cup of tea and crumpets (GF of course).

So I just moved along most days knowing something bizarre was going to pop up, deal with it and move on. I did all of the suggestions here with Vit D, Mag, and B Vits. Zantac and Allegra never helped me but I tried them. I kept learning new things when my brain was working. With the help of this board, my attention came back to magnesium deficiency. I just couldn't understand how that could be. I was taking 500 mg in chelated glycinate/malate a day, along with lotion, oil, and epsom salts. I finally found a liquid form that is highly absorbable. By this time I didn't put much faith in anything. I was actually afraid because I have tried so many things that sometimes they had an ill effect. Boy am I glad I tried this! ALL of the symptoms above have faded away. It took a good 2 months to start noticing real changes. I'm starting to feel like my old self again. If you would have told me a year ago that all of these symptoms were due to mag deficiency I would have said hmmmm okay your crazy! I still struggle with occasional WD off and on in my cycle but I have confidence that will improve with a little more time.

This is not a sad story. This story is for that person who has tried everything and still feels ill with little hope. Your answer could be just around that corner. Go easy and pull back when you need to but NEVER GIVE UP. And I wouldn't change these events for anything. I needed to use some new tools (and a new tool box) to be able to cope when things got rough. I wouldn't have learned them without this struggle.

P.S. There is a funny post somewhere about how we try everything to heal including glasses that light up to change your brain waves. I own them, Deepak Chopra sells them as the Dream Weaver. I seriously have tried it all....
Laughing (not excluding white witchcraft and chanting) BIG LOVE to ALL
_________________
Vanessa
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Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 871
User's local time:
2017 Jun 27 - 3:50 PM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sat Aug 13, 2016 9:10 am    Post subject: Reply with quote

Dear Vanessa,

Your story is so similar to mine, except that it has taken me 3 years to feel better. Why? I think it is because I'm older than you, and that it takes longer to get better the older we get.

Thank you for your story. I hope our new members will understand that there is hope, and that they must not give up!

And thank you for your advice as to try the ReMag. It has made a huge difference in my life Very Happy

Lilja
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 871
User's local time:
2017 Jun 27 - 3:50 PM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sat Aug 13, 2016 9:21 am    Post subject: Reply with quote

The only thing I would add to your story is the overwhelming feeling of loneliness.

Lilja
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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hollyweb
Gentoo Penguin
Gentoo Penguin
unknown IP

Joined: 01 Jul 2016
Posts: 288
User's local time:
2017 Jun 27 - 7:50 AM


Food Intolerances : Gluten, Corn, Rice, Oat, Dairy, Eggs, Soy, Potato (Nightshades), Almonds, Cashews, Nuts/Seeds, Chicken, Beef, Tuna, Pork, Coconut, Asparagus, Avocado, Fiber + Still Finding Out!
Location: Cameron Park, CA

PostPosted: Sat Aug 13, 2016 12:32 pm    Post subject: Reply with quote

Vanessa, thank you for sharing your incredible journey. You (and Lilja) have expressed so eloquently many of the mental and emotional aspects of this illness, and how life-changing it truly is. We do not hear any of this from our doctors. The life lessons learned from having MC are indeed vital, and apparently ones that our inner selves 1) could no longer prevent us from the consequences of continuing the way we had been and/or 2) made sure we came to a screeching halt so that we HAD to pay attention and make lifestyle changes so that we COULD survive in the future.

Your advice is spot-on; shows the steps you took in your physical, emotional and spiritual self to come to terms with MC by accepting it without "giving in or giving up" that you could make things better, and I just want to say thank you so much for being so open and sharing this with others. And, like Lilja, I'll be forever beyond grateful for your powerful endorsement of ReMag, as even in the short time (little over a week) that I've been taking it, it's helped me in so many ways that other forms of magnesium did not even make a dent. You and others on this board have changed my life, and given me my life back.

THANK YOU, VANESSA! And I'm so happy that you've come so far!!

Hugs,
~ Holly
_________________
2015 Hashimoto's, MTHFR
2016 LMC, Malabsorption
2017 Lymphocytic Dermatologic Vasculitis

"I strive to live in my heart, not in my head!"
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 552
User's local time:
2017 Jun 27 - 9:50 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Sat Aug 13, 2016 12:45 pm    Post subject: Reply with quote

Yes......I remember being desperate at the Dr.s office when she gave me the "it's all in your head" speech. That is one of the loneliest scariest feelings to know you are definitely on your own kid. I do have to say that surprisingly even though I spend A LOT of time alone I very rarely feel lonely. When you start feeling well again it frees up a lot more room to fill your time with things you enjoy. I also think all the work I put into mind/body connection helped greatly with this. And of course the people here make it a lot more bearable. I definitely had a lot more anger and sadness going through the process.....

AND I'm soooo excited the magnesium is working out well for you. If just one person benefits from my experience I can rest easy. Wink
_________________
Vanessa
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 552
User's local time:
2017 Jun 27 - 9:50 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Sat Aug 13, 2016 12:56 pm    Post subject: Reply with quote

Holly

Great news! I'm so glad you gave ReMag a try and it's helping. You are so welcome! I have so much gratitude for everyone here knowing they truly have saved me from much unnecessary suffering. And to be open about the mental/emotional aspects is a must. We are the only ones who truly understands what this feels like.
_________________
Vanessa
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Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 805
User's local time:
2017 Jun 27 - 9:50 AM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Sat Aug 13, 2016 2:55 pm    Post subject: Reply with quote

Hi, Vanessa. Thank you so much for sharing your journey. I hope it will be helpful to many who are just starting on their way to find healing. I remember all of the feelings that you mentioned and I couldn't imagine that this was now my life. I like living alone. I think it's a much more peaceful existence. My husband deployed for 8 months shortly after my diagnosis and I really don't think I would have healed as quickly had he been here. I was able to focus on me and not eat out (his favorite thing). I am now more empowered in speaking up as to where I want to travel and where we will eat. We owe it to ourselves to be our best advocates. Hugs,
_________________
Marcia
------------
My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 6845
User's local time:
2017 Jun 28 - 1:50 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Aug 13, 2016 4:00 pm    Post subject: Reply with quote

Great post Vanessa!

there are quite a few members already benefiting from swapping across to Re-Mag thanks to your post, and I am sure many more in the future will benefit from this post

happy healing
hugs
Gabes
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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dhouts
Adélie Penguin
Adélie Penguin
United States

Joined: 07 May 2016

Posts: 113
User's local time:
2017 Jun 27 - 7:50 AM



Location: California

PostPosted: Sat Aug 13, 2016 9:49 pm    Post subject: Reply with quote

Yes Vanessa, I'm one of those that read your post and decided to try the ReMag. I'm slowly working up to the amount that I need to take, I have also added lemon to the water but it's really tricky for me to get past the taste. Anyway, what little I do drink, I have noticed that I feel better and I love that it doesn't adversely affect my gut. Thanks so much for your original post and this follow-up on your health. So good to hear that you are feeling better.
_________________
Diana
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LauraAnn
Adélie Penguin
Adélie Penguin


Joined: 08 Apr 2016

Posts: 143
User's local time:
2017 Jun 27 - 8:50 AM


Food Intolerances : Oat, corn, rice, tuna, beef, chicken, walnut, almond, pork, chashew, white potato, eggs, soy, gluton, casein
Location: El Paso TX

PostPosted: Sun Aug 14, 2016 9:50 am    Post subject: Reply with quote

HI Vanessa! I have been following your remag story and gave it a try last week. I put 1/8 tsp in two cups of water with salt and sipped on it all day for 4 days. On the fifth day I was awaken with the loudest gurgling I have ever heard and felt like a bus had backed over me during the night. I was expecting to be spending the day on the potty, but lucky for me it was "all bark and no bite." I haven't been experimenting with new foods, so I guess I might be one of those people who can't tolerate this product. I've only had that kind of reaction many years ago when my dr had me on very high daily dose of D2 and I couldn't do that for more than a week either. Guess I'll just stick with the topical mag oil for now. Oh well, it was sure worth a shot! My sister is going to use the rest of my bottle so it won't go to waste.

I did have my 23andme done, but I haven't been able to figure out if there might be a genetic reason for reacting poorly. There is too much information for me to decipher! I never was very good at science.

Thanks for all the good information you have been sharing. Have a good day!

Laura
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 552
User's local time:
2017 Jun 27 - 9:50 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Sun Aug 14, 2016 11:28 am    Post subject: Reply with quote

Hey Laura,
Good for you for giving it a try....if you google Dr. Dean and "When magnesium makes me worse" you'll find some interesting things. I know Gabes has posted this in a sticky for people to look at. I had a bit of contrast when first starting the product also. It took me a good 6 weeks before things kind of evened out. I'm glad the bottle won't go to waste....just keep this info in your back pocket if and when you are ready. Thanks for the update! Very Happy Very Happy
_________________
Vanessa
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LauraAnn
Adélie Penguin
Adélie Penguin


Joined: 08 Apr 2016

Posts: 143
User's local time:
2017 Jun 27 - 8:50 AM


Food Intolerances : Oat, corn, rice, tuna, beef, chicken, walnut, almond, pork, chashew, white potato, eggs, soy, gluton, casein
Location: El Paso TX

PostPosted: Sun Aug 14, 2016 1:55 pm    Post subject: Reply with quote

I did happen upon that article and read it this morning. I was trying to relate my symptoms into it and didn't seem to find myself. I think I'm just a big chicken and am afraid of new things! But I will follow your advise and keep this in my back pocket to be looked at again down the road.

Thank you again,

Laura
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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1111
User's local time:
2017 Jun 27 - 7:50 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Sun Aug 14, 2016 6:19 pm    Post subject: Reply with quote

Good for you Vanessa!

I take the re-mag slowly but surely...not near the therapeutic stage dose, may not get there either as the taste gets a bit strong and I don't do the best drinking so much water during the day. Plus I work full time so I don't have the luxury to pack the bottle around with me, drink lots and go to the bathroom often...hoping it just starts to help and healing appears out of no where some day.

I stay hopeful...since I have learned lots and healed over a year now with many bumps along the way...I figure I need to give it more time and I am 10 years older than you so that probably figures in there somewhere too.

Hugs
Erica
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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dhouts
Adélie Penguin
Adélie Penguin
United States

Joined: 07 May 2016

Posts: 113
User's local time:
2017 Jun 27 - 7:50 AM



Location: California

PostPosted: Sun Aug 14, 2016 8:16 pm    Post subject: Reply with quote

Well, wonders never cease! To my cap full of ReMag in my glass of water, I added lemon, ice, and a straw. The ice and straw are the new additions, right here right now! And it seems to go down so much easier. I think I can do this, after all. Go me!
_________________
Diana
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 552
User's local time:
2017 Jun 27 - 9:50 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Mon Aug 15, 2016 7:02 pm    Post subject: Reply with quote

Diana,

That's awesome! I think I must be weird because the taste of plain water is gross now. Or it means I really need the minerals. I really like the taste.
_________________
Vanessa
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