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New to Limphocytic Colitis

 
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Lisaf

United States

Joined: 20 Aug 2016

Posts: 2
User's local time:
2017 Aug 21 - 7:55 AM


Food Intolerances : ?
Location: Arizona

PostPosted: Sun Aug 28, 2016 3:13 pm    Post subject: New to Limphocytic Colitis Reply with quote

Hi everyone. Well July 4th after a very stressful disclosure from my daughter, I started having diarrhea the it quickly went to 15 to 20 times a day. I went to clinics for various stool tests...my doctor is impossible to get an appointment with. Anyway I did see her and she did a blood test and C-diff. Everything came back negative. They I went to a GI specialist. After a colonoscopy with biopsies, I was diagnosed with Lymphocytic Coloie. The D actually reduced to twice a day two days be fore the prep. I have been good ever since. They did a celiac allergy blood test that was negative. Has anyone done the stool celiac test with the place in Texas? It is linked on the support site. I am thinking of doing it. I was taking narprosin just before the D for a neck injury, I also return to anti-depressants recently. I know they are linked to LC. Anyway I am terrified the D Will return. Any advice? It was frightening a d debilitating.

I am glad to have found all of you.
lisa
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7008
User's local time:
2017 Aug 21 - 11:55 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sun Aug 28, 2016 3:22 pm    Post subject: Reply with quote

Hi Lisa
welcome to the group and sympathies that you had to find us

the best advice is to spend some time reading the posts and discussions here on the forum.
there are quite a few recent discussions with other new members in the Main Message Board that will explain things and help remove the fear and unsettlement.
http://www.perskyfarms.com/phpBB2/viewforum.php?f=2

We also have a guidelines for recovery area with eating suggestions and information for the early stage (apologies that some sections are incomplete)
http://www.perskyfarms.com/phpBB2/viewforum.php?f=79

many members have done the Enterolab testing, to determine main food triggers so they can come up with low inflammation eating plan
the discussions and results are in this section of the forum
http://www.perskyfarms.com/phpBB2/viewforum.php?f=67

hope this helps
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30283
User's local time:
2017 Aug 21 - 7:55 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Aug 28, 2016 4:25 pm    Post subject: Reply with quote

Hello Lisa,

Welcome to our Internet family. Because your symptoms only began about 6 weeks ago, it's very likely that the combination of stress, NSAIDs, and antidepressants is responsible for your LC. There is a possibility that if you stop using (and totally avoid) the NSAIDs and the antidepressant you are taking, your LC may go into permanent remission. But after more time passes, at some point food sensitivities will become almost a certainty.

Note that both pain and depression are symptoms of magnesium deficiency (and so is LC for that matter). Avoiding the drugs that I mentioned and correcting your magnesium deficiency may be all you need for a "cure" that many here would view as miraculous. I refer to it as a "cure" because if it works, it should allow permanent remission. But just as the rest of us have to stick to a rigid diet, if you should resume using the medications that triggered your LC at some point in the future, then you would almost surely suffer a relapse, and the next time stopping the use of those drugs might not bring remission (without diet chages).

If discontinuing the use of those medications doesn't quickly stop your symptoms however, then you have probably already developed food sensitivities. And in that case, yes, as Gabes pointed out, many of us have used EnteroLab to test for food sensitivities. Their stool tests are by far the most accurate and reliable tests available for determining food sensitivities.

Obviously we can't guarantee that avoiding those medications will bring remission in your case, but it's certainly worth a try, because it's the simplest possible fix. Again, welcome aboard and please feel free to ask anything.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Lisaf

United States

Joined: 20 Aug 2016

Posts: 2
User's local time:
2017 Aug 21 - 7:55 AM


Food Intolerances : ?
Location: Arizona

PostPosted: Sun Aug 28, 2016 5:37 pm    Post subject: New to LC diagnosis Reply with quote

Thank you for your help and information. In my research, I read that extreme constipation for years may have been a symptom of LC? Maybe I have had it for years but it just presented as diarrhea now.

Any thoughts?

Lisa
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Lisa
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7008
User's local time:
2017 Aug 21 - 11:55 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sun Aug 28, 2016 6:31 pm    Post subject: Reply with quote

constipation is definitely an indicator of inflammation and nutritional deficiencies such as Vit D3 and magnesium.

Many people here had digestion issues / IBS issues for years prior to their MC diagnosis
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30283
User's local time:
2017 Aug 21 - 7:55 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Aug 28, 2016 8:40 pm    Post subject: Re: New to LC diagnosis Reply with quote

Lisaf wrote:
Thank you for your help and information. In my research, I read that extreme constipation for years may have been a symptom of LC? Maybe I have had it for years but it just presented as diarrhea now.

Any thoughts?

Lisa


I had a similar history. The constipation was probably due to chronic magnesium deficiency, but it apparently predisposed me to MC. After my symptoms began I had alternating D and C.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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dhouts
Adélie Penguin
Adélie Penguin
United States

Joined: 07 May 2016

Posts: 116
User's local time:
2017 Aug 21 - 5:55 AM



Location: California

PostPosted: Mon Aug 29, 2016 7:47 am    Post subject: Reply with quote

Looking back 35 years, I had the same thing. I was working at a hospital, stopped one of the drs in the hall and asked about it. Irritable bowel, he said and it never occurred to me to go to GI. In the 80's, I had brain fog and I noticed that when I awoke, I felt great, but after eating toast for breakfast, there was the brain fog. I didn't know anything about gluten. It was also about that time I began taking copious amounts of Advil. The D began in earnest in 2006. I went to my GP who wanted me to see a GI but I decided to self medicate. I finally went to GI in 2009 and received the diagnosis of MC.

I'm so happy for you, Lisa, that you didn't wait to see a GI doctor. And now that you know what you're dealing with, you're well on your way to healing. Welcome to this group, lots of good information and very kind people.
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Diana
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