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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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SusanneK
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 24 Jun 2016

Posts: 50
User's local time:
2017 Jun 27 - 9:43 AM



Location: Louisiana

PostPosted: Sat Aug 27, 2016 8:10 pm    Post subject: Reply with quote

Just wanted to give you all a little update.

I'm doing really, really well! My BMs are normal and down to once a day!!! I do believe the prednisone helped (I'm down to 5 mg every other day and about to stop it completely) but I have no doubt that it is the diet that has made the biggest difference. Once again, I cannot express how grateful I am to have found this site and Tex's book and gotten some REAL help.

Even after prescribing the prednisone, my GI doc still wanted me to take Apriso but I refuse.

I haven't introduced any new foods yet - I wanted to get off the prednisone first so that it wouldn't mask any reaction.

But to think how horrible I felt just two months ago, unbelievable. When I first googled CC, this site came up as one of the first, so I am hopeful that anybody who gets any form of MC will find this and get the help I did.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30082
User's local time:
2017 Jun 27 - 9:43 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Aug 27, 2016 9:35 pm    Post subject: Reply with quote

Great progress report. Thanks for sharing the good news.

I hope you continue to heal.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SusanneK
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 24 Jun 2016

Posts: 50
User's local time:
2017 Jun 27 - 9:43 AM



Location: Louisiana

PostPosted: Thu Sep 08, 2016 6:01 pm    Post subject: Reply with quote

I had an appointment with my GI doc today as a routine follow-up. I really thought about canceling because I feel there's nothing he can do for me, but I went anyway just to let him know that I am doing very well without his meds and that it's the diet that has helped me feel so much better.

I've been completely off the prednisone for over a week now, and I am still doing great.

The doc sounded genuinely happy for me - but he didn't ask a single question about the diet which was disappointing to me. I guess I shouldn't be surprised. As I've seen so many of you say, they are not interested in diets, they just want to write prescriptions.

But good news - he agreed that I do not need to see him again, unless I have a flare-up. Well, guess what - if I do, I will find the solution in my kitchen!!
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 6845
User's local time:
2017 Jun 28 - 1:43 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Sep 08, 2016 8:25 pm    Post subject: Reply with quote

Susanne
fantastic news

for other newbies that might read this post, what eating plan are you doing?
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30082
User's local time:
2017 Jun 27 - 9:43 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Sep 08, 2016 9:08 pm    Post subject: Reply with quote

thumbs up Great!

Thanks for the update.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SusanneK
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 24 Jun 2016

Posts: 50
User's local time:
2017 Jun 27 - 9:43 AM



Location: Louisiana

PostPosted: Thu Sep 08, 2016 9:16 pm    Post subject: Reply with quote

Thank you Gabes.

My diet right now is extremely simple and some might call it boring.

For breakfast I have GF cereal with coconut milk or lactose-free yogurt with probiotics.

For lunch I have turkey, just plain deli cuts, and potato chips with no ingredients other than oil and sea salt.

For dinner I usually have "dirty rice" which is rice boiled in home made bone broth mixed with ground beef. Sometimes I just have boiled potatoes.

I'm getting ready to experiment with new foods, but I'm really quite satisfied with what I'm eating now. I'm not much of a gourmet... But I'm also curious to see what I can or can't tolerate. Looking back, I suspect that aspartame was a big culprit (I was pretty much a Coke Zero addict) but I'm not ready or willing to experiment with that. There's really no point.
For those who crave carbonated drinks, there is Sparkling Ice which comes in a variety of flavors and has no sugar or artificial sweeteners.

I was happily surprised to find out that I can still have my favorite iced coffee drink which definitely has milk in it so maybe dairy is not such a huge problem for me. It most definitely also has sugar in it.

But most of all, I think that the rice boiled in bone broth has had the biggest benefit.
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crervin
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 14 Jul 2015

Posts: 639
User's local time:
2017 Jun 27 - 10:43 AM


Food Intolerances : gluten, chicken eggs, guar gum, corn, maple syrup, fruit, histamines
Location: Chattanooga, TN

PostPosted: Fri Sep 09, 2016 5:22 am    Post subject: Reply with quote

So happy you are doing better! I love hearing these stories!!

Best of luck to you!
_________________
Martha E.

Philippians 4:13

Jul 2008 took Clindamycin for a Sinus infection that forever changed my life
Dec 2015 MC Dx
Jul 15, 2015 Elimination Diet
Aug 17, 2015 Enterolab Test
Dec 2015 Reflux
Sept 2016 IC
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