Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

Visit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
Thank you!

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Member Success Stories
 View previous topic :: View next topic  
Author Message
skp
Adélie Penguin
Adélie Penguin
United States

Joined: 12 Jan 2017
Posts: 71
User's local time:
2017 Jun 27 - 9:38 AM


Food Intolerances : Gluten, dairy, eggs, soy. Diagnosed LC Jan, 2017. Chronic Hives ,an AI, Jan 2014
Location: North Carolina

PostPosted: Thu Apr 13, 2017 1:48 pm    Post subject: Thank you! Reply with quote

As I plod through the Stage One Diet, I am acutely aware daily of how much this forum means to me. Like most others, my GI doc appears to be clueless. Every time I explain to someone new that I have microscopic colitis, I tell them that if it weren't for this forum, I wouldn't know what to do, how to handle it and what I might expect in the future.

Those of you who have contributed to this forum for years have changed the lives of hundreds of people with your vast experience. I don't know how long this forum has been going nor who was initially at the helm. I do know that Tex, Gabes and numerous others like Erika (I wish I knew who all to thank) have made an immeasurable difference to those of us receiving a diagnosis that we had likely never heard of. You have provided us a softer landing during a very lonely time.

This forum is like the guideposts on a long, winding, uphill hike through a dense forest. Think about it! Without those guide posts (Who in the world figured out the Stage One and Stage Two Diets?!! Low fiber? The magnesium connection? Vitamin D? Enterolab testing, which tests to order? Weaning off of budesonide? And the list goes on and on...) Tex, your in-depth book had to take hours and hours of research.

I have a fantasy of a forum reunion where I can thank you face-to-face. I owe you more than you will ever know.

Susan
Back to top
Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1111
User's local time:
2017 Jun 27 - 7:38 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Thu Apr 13, 2017 2:42 pm    Post subject: Reply with quote

Wink
I've been where you are Susan...and believe me I've pondered those same thoughts. I like puzzles, not necessarily my own but enough that I had to figure this out one or another!

Glad to of been some help along the way because God knows this forum has been my saving grace, each and every one of the contributions made by all here Very Happy
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Back to top
twirlitgirl
Adélie Penguin
Adélie Penguin


Joined: 21 Aug 2014

Posts: 167
User's local time:
2017 Jun 27 - 9:38 AM


Food Intolerances : gluten,dairy,corn,soy, nightshades these are the ones known
Location: Canada

PostPosted: Thu Apr 13, 2017 2:54 pm    Post subject: Reply with quote

Susan, I echo all you have said, this forum really has been life saving for me as well and I do not for one minute take my health for granted and work everyday to be the best I can be, I know with the guiding posts in the dense forest we will all get there to a place feeling comfortable with food and with stress levels. I was so lost until I found this forum , like you, I have found lifelong friends on here whom I probably will never meet in person but in my heart I know they exist in this world is such a comfort to me. Yes, it would be an awesome idea to have a forum reunion until then, I am so happy, we do this everyday when we reach out and connect through our thoughts and feelings expressed that only those with this disease can relate to and understand. We are all there for eachother no judgement ever and that is so refreshing allowing us to write about our deepest thoughts and fears and hopes and joys.. big hugs. Have a beautiful peaceful day. red-haired girl
_________________
diagnosed with LC by biopsy
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
Back to top
Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 6845
User's local time:
2017 Jun 28 - 1:38 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Apr 13, 2017 3:37 pm    Post subject: Reply with quote

Susan
it warmed my heart to wake up and read this post today! thank you for taking the time to write it

Quote:
Without those guide posts (Who in the world figured out the Stage One and Stage Two Diets?!! Low fiber? The magnesium connection? Vitamin D? Enterolab testing, which tests to order? Weaning off of budesonide? And the list goes on and on...

The combination of inputs and discussions by all the members here - and knowledgeable supportive people like Tex, Polly, and various others over the past 11 plus years

I decided to type up the guidelines with the stage one and stage two to save my fingers having to retype the info for new people etc. having key information in the one place makes it easier. (For both the new person and for those offering advice)

the majority of the foundation/backbone of the integrity, support, patience, knowledge aspects of this group is Tex..

it is definately the top item on my bucket list to be able to come to the USA and met the wonderful friends I have made via this group..
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Back to top
Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 805
User's local time:
2017 Jun 27 - 9:38 AM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Fri Apr 14, 2017 5:57 pm    Post subject: Reply with quote

Susan, we are all in this together and this forum has been life saving for me as well. I shudder to think where I would be today had I not found this wonderful group. I'm so glad that you found us and before you know it you'll be offering advice to newbies!
_________________
Marcia
------------
My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
Back to top
LauraAnn
Adélie Penguin
Adélie Penguin


Joined: 08 Apr 2016

Posts: 143
User's local time:
2017 Jun 27 - 8:38 AM


Food Intolerances : Oat, corn, rice, tuna, beef, chicken, walnut, almond, pork, chashew, white potato, eggs, soy, gluton, casein
Location: El Paso TX

PostPosted: Fri Apr 14, 2017 6:46 pm    Post subject: Reply with quote

Having come this far in healing in a years time is ALL due to this site and everyone who contributes. You have indeed found your saving grace. I have no idea where I would be today if not for this group. Please continue to read read read. It's all here! And if you can't find it....ask! I can't go a day without logging on to find out what new subject I will learn about and who I'll meet. Good to meet you Susan! Very Happy
_________________
Laura Turner
.........
"There is a crack in everything. That's how the light gets in". - Leonard Cohen. 1934-2016
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Member Success Stories All times are GMT - 6 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright © 2005–2017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery