Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
I was known as the special case mystery patient...
Goto page Previous  1, 2, 3
 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Discussions on Treatment Options Using Diet, and/or Medications
 View previous topic :: View next topic  
Author Message
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30861
User's local time:
2017 Dec 17 - 5:20 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Jul 28, 2017 8:31 pm    Post subject: Reply with quote

Well, it varied sometimes but in my case at first the D would last for maybe a couple of weeks, with fever for maybe a week, but after a year or so the D usually only lasted about a week to 10 days and I didn't always have fever with it. When I did, it was for maybe 3 or 4 days. This was about 15 years ago, so my memory may be a little fuzzy on some of the details. This was before I changed my diet of course.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
lalalauren16
Little Blue Penguin
Little Blue Penguin


Joined: 30 May 2017
Posts: 31
User's local time:
2017 Dec 17 - 5:20 PM


Food Intolerances : seafood, nuts, raw veggies, fruits, eggs, rosemary, .. many more
Location: Santa Barbara

PostPosted: Fri Jul 28, 2017 8:53 pm    Post subject: Reply with quote

Hmm wow that's fansinating because I just talked with my GI and he said fevers aren't apart of microscopic colitis. How do they not know this? And he is saying now I might have to be on antibiotics for the rest of my life for c-diff? I have never heard of such a thing that's legit insane!!!!!!
_________________
Lauren B
Back to top
Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7276
User's local time:
2017 Dec 18 - 9:20 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Jul 29, 2017 6:06 am    Post subject: Reply with quote

yes, even with the veges cooked for long duration, they do retain nutrients.
this is also the other advantage of having veges as part of soups and stews - you are consuming the juices they are cooked in.

or for more flavour - roast the veges. I peel mine, then put them in a plastic bag, and coat them with safe oil and some salt, and then roast.


re the C-diff etc my thoughts are is that there is a combo of issues going on and while you have the level of inflammation you have, and key nutrient deficiencies, no treatment will work so well, until your body has reduced inflammation, the nutrients to heal and balance with your immune system/ adrenals to function better (not over reacting, not under reacting etc)
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30861
User's local time:
2017 Dec 17 - 5:20 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Jul 29, 2017 9:00 am    Post subject: Reply with quote

Remember that in my case, the fever might have been associated with diverticulitis. Interestingly, the inflammation associated with diverticulitis is caused by same mechanism that causes the inflammation associated with LC, namely lymphocytic infiltration into the mucosa of the colon. When you have both going on at the same time, it's tough to separate out the symptoms. But the medical professionals are probably correct, the fever is caused by the diverticulitis. In your case, the fever is caused by the C.diff.

But that begs the question, "If lymphocytic infiltration causes fever with diverticulitis, why can't it cause fever with MC (LC)?" The mode of inflammation is the same.

I don't know if you've read my book, but in it I explain why (IMO) the immune system does so many seemingly strange things. IMO the immune system tends to concentrate on what it perceives to be the most serious threat at the moment. That's why intestinal worms (Helminths) can be successfully used to distract the immune system and stop a Chron's disease reaction, for example. With that in mind, I suspect that at least part of the reason why you're having recurring C. diff infections is because your immune system is distracted by other issues, so that it never concentrates on trying to control the C. diff (until it's too late).

Successful pathogens tend to generate enzymes that send signals to the immune system that "everything is OK down here". So the immune system may generally ignore what's happening. Cancer is a good example of an invader that is generally immune to immune system attack. Early on, cancer could be easily destroyed by the immune system. Except that cancer cells produce enzymes that allow it to "hide" in plain sight from the immune system. Likewise, the immune system should be easily capable of destroying small beginning colonies of C. diff bacteria. But they manage to convince the immune system that they are not a threat, so the colony grows. It can soon reach a size where it's too late for the immune system to be able to stop it, even if it recognizes the threat.

Quoting from my book on vitamin D:

Quote:
An important link between cancer and autoimmune disease has been found in a protein known as survivin.
While survivin is highly expressed in fetal tissue during development, it's normally absent from adult tissue.18 Very recently, researchers have discovered that the T-cell lymphocytes that are responsible for the inflammation that causes MG, contain survivin.19 Survivin is well known to cancer researchers, because it is one of the proteins known as "inhibitors of apoptosis proteins" (IAPs). In medical circles, survivin is also known as baculoviral inhibitor of apoptosis repeat-containing 5 (BIRC5). In humans, it's encoded by the BIRC5 gene.

As the descriptive name suggests, these proteins share the distinction of being able to inhibit programmed cell death. Obviously this implies that IAPs are capable of preventing the immune system from destroying cells that are protected by IAPs, and this technique is a primary survival tool used by cancer cells.


Here are references 18 and 19 from that quote:

18. Adida, C., Crotty, P. L., McGrath, J., Berrebi, D., Diebold, J., & Altieri, D. C. (1998). Developmentally regulated expression of the novel cancer anti-apoptosis gene survivin in human and mouse differentiation. American Journal of Pathology, 152(1), 4349. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/9422522

19. Staff. (2014, July 22). Pathogenic connection between autoimmune disorders, cancer found. ScienceDaily. [Web log message]. Retrieved from http://www.sciencedaily.com/releases/2014/07/140722142411.htm

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
lalalauren16
Little Blue Penguin
Little Blue Penguin


Joined: 30 May 2017
Posts: 31
User's local time:
2017 Dec 17 - 5:20 PM


Food Intolerances : seafood, nuts, raw veggies, fruits, eggs, rosemary, .. many more
Location: Santa Barbara

PostPosted: Sat Jul 29, 2017 11:27 pm    Post subject: Reply with quote

Gabes - Should I be always peeling my veggies? This whole time I have not been doing that but cooking from for 20 minutes, well with c-diff I have had it 4 times plus a fecal transplant so at this point I do not think my body can naturally rid itself of it. So they put me back on Vanco and I'm going to try and organize an immediate fecal transplant again.

Tex - Yes that all makes a lot more sense to me. I think that was happened. It is frustrating through since I got a transplant so it should have stopped this but I guess there was still a complication, because here I am a month later and it came back. So I feel at this point I need to get another and start taking kombucha and florastor probiotic even though it interferes with MC I have no choice and these attack the C-Diff. I did purchase your book today. I am just so terrified that I will end up dying from this since nothing is stopping it from coming back.
_________________
Lauren B
Back to top
Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7276
User's local time:
2017 Dec 18 - 9:20 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Jul 29, 2017 11:55 pm    Post subject: Reply with quote

yes peel veges
reduce fibre, and minimise contaminates/toxins
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Discussions on Treatment Options Using Diet, and/or Medications All times are GMT - 6 Hours
Goto page Previous  1, 2, 3
Page 3 of 3

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright 20052017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery