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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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Jodybug

unknown IP

Joined: 23 Jul 2017
Posts: 18
User's local time:
2017 Dec 14 - 9:20 AM


Food Intolerances : Still learning. Allergic to soy. Everything seems to make my stomach hurt.
Location: Florida

PostPosted: Sun Jul 23, 2017 8:32 pm    Post subject: Hi fellow potty peeps Reply with quote

I would like to introduce myself. My name is Joleen and I am 40 years old. I have been dealing with issues related to my stomach since I was in high school. I missed a lot of school because of it. They told me when I was 17 that I had IBS. Nothing seemed to help. I just had my third colonoscopy June 15 2017. I had an endoscopy as well with biopsies. I don't think any of the other ones did a biopsy. I woke up and again was told everything looked good. I was like how could that be? My stomach has gone to the crapper, literally. I was aggravated and depressed. I thought here we go again, no answers and no help. When I went for my four week follow up, that's when the answer came. I have lymphocytic colitis. I was told to eat activia yogurt and take sulfasalizine and get some Align. When I asked for more info she said to Google it! I was at a loss. That's when I found this site. Yay, there are others out there to help. I am so greatful. I have been on a gluten/soy/dairy free diet for a week now and researching the paleo diet. Today was a bad day tho. I hurt so bad I could not breath and crying in the bathroom. The only way I can describe the pain to someone is to compare it to labor pains. Actually labor pains were more bareable. I do know from an allergy test done about 9 years ago I am allergic to soy. I am a new hairstylist and have been an assistant to my boss for a year now, but afraid to take clients because I spend so much time in the bathroom, even at work. I get gut wrenching pains, D, nausea, really bad gas, and cold sweats. That's not counting constant headaches, extreme fatigue, joint pains, etc, etc. I know people get tired of hearing me complain and my potty problems. Thanks for listening to me rant, and hello fellow MC peeps and potty people!
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7264
User's local time:
2017 Dec 15 - 1:20 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sun Jul 23, 2017 9:02 pm    Post subject: Reply with quote

welcome Jody
please read the posts /forum areas that is aimed at new people - you will see lots of good info that will help you on the healing journey.

you are not alone with your symptoms and bad cramping pains! for me personally, when I got onto the right eating plan (no major triggers, low fibre, bland) the bad cramping pains went away

we have a guidelines to recovery that has further info about the eating plan, key supplements etc
http://perskyfarms.com/phpBB2/viewforum.php?f=79

hope this helps
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Jodybug

unknown IP

Joined: 23 Jul 2017
Posts: 18
User's local time:
2017 Dec 14 - 9:20 AM


Food Intolerances : Still learning. Allergic to soy. Everything seems to make my stomach hurt.
Location: Florida

PostPosted: Sun Jul 23, 2017 9:14 pm    Post subject: Reply with quote

Thank you so much Gabes. I will definitely check it out. I have spent most of the day reading everything I can here. I have learned so much already. I am so grateful . It can be daunting when the doctor can't answer your questions and tells you to just Google it.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:20 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Jul 23, 2017 9:16 pm    Post subject: Reply with quote

Hello Joleen,

Welcome to our Internet family of potty people. It sounds as though you've been going through pretty much what the rest of us have had to deal with at one time or another. It's good to see that you're already on the road to recovery, with a healing diet in place.

Your GI doc leaves a lot to be desired, as you've already noticed. Sulfasalizine is an obsolete treatment that was replaced by mesalamine about 20 or 30 years ago. Many people can't take it, because it's a sulfa drug with some bad side effects. There are a number of much better drugs available to treat IBDs, if you should want to use drugs to treat your LC. But the right diet will heal your gut, as it stops the inflammation.

Four weeks before you were told the diagnosis? The woman obviously doesn't care and doesn't know much about the disease, or how debilitating it can be. Shame on her.

The intestines heal somewhat slowly, but your symptoms should begin to let up after the inflammation begins to subside and your intestines begin to heal.

Again, welcome aboard and feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Jodybug

unknown IP

Joined: 23 Jul 2017
Posts: 18
User's local time:
2017 Dec 14 - 9:20 AM


Food Intolerances : Still learning. Allergic to soy. Everything seems to make my stomach hurt.
Location: Florida

PostPosted: Sun Jul 23, 2017 9:45 pm    Post subject: Reply with quote

Hi Tex, and thank you. They actually prescribed Asacol initially, but with my insurance, it was going to cost me $500.00. I told them I could not afford that, so they then prescribed sulfasalizine instead. I at the time didn't know that diet could heal the inflammation. Not until I found this forum. I actually do not like taking meds, I already have to take enough due to heart problems and other health issues.
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7264
User's local time:
2017 Dec 15 - 1:20 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sun Jul 23, 2017 10:06 pm    Post subject: Reply with quote

Jody
what many others here have found (and you may see this as you read through various posts and replies) is that a lot of the additional health issues that people with MC have is linked to deficiency of Vit D3 and magnesium.

Since fixing magnesium deficiency I have been able to come off heart medication. (and reducing inflammation in my body etc) this and fixing other key deficiencies I have resolve life long hormonal issues, histamine/allergy issues,..
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Jodybug

unknown IP

Joined: 23 Jul 2017
Posts: 18
User's local time:
2017 Dec 14 - 9:20 AM


Food Intolerances : Still learning. Allergic to soy. Everything seems to make my stomach hurt.
Location: Florida

PostPosted: Sun Jul 23, 2017 10:15 pm    Post subject: Reply with quote

That makes a lot of sense. I do know that my blood work always comes back that magnesium and vit D is always deficient. Also my good cholesterol is too low, bad is too high and triglycerides are too high no matter how much I try to eat right(or I thought at the time I was eating right).
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Sue777
Gentoo Penguin
Gentoo Penguin


Joined: 19 Jun 2005

Posts: 381
User's local time:
2017 Dec 14 - 11:20 AM



Location: Connecticut

PostPosted: Sun Jul 23, 2017 10:19 pm    Post subject: Reply with quote

Hi, welcome, but sorry you had to find this forum.

You sound like me: I had stomach issues starting at 16 and didn't participate in any school activities or sports or clubs because I was always running to the bathroom, and I, too, missed a lot of school days. Back then they called it "spastic colon" and it calmed down and flared up intermittently, but my whole life has been spent knowing where all the nearest bathrooms are.

15 years ago it got really bad and wouldn't let up and that's when they found collagenous colitis. My docs (and even the nutritionist) were all saying that diet has nothing to do with it and since I wanted to believe that, I just kept taking medications. I will soon be modifying my eating drastically (depending on what my Enterolab results show) and hopefully getting off of or at least weaning down on the medications.

Keep reading - you're in the right place.
Sue
_________________
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Jodybug

unknown IP

Joined: 23 Jul 2017
Posts: 18
User's local time:
2017 Dec 14 - 9:20 AM


Food Intolerances : Still learning. Allergic to soy. Everything seems to make my stomach hurt.
Location: Florida

PostPosted: Sun Jul 23, 2017 10:30 pm    Post subject: Reply with quote

Hi Sue. I have had doctors call my "IBS" spastic colon before. When I was at cosmetology school things started getting really bad. I started two years ago. I have been done a year now. I had to run out of class constantly and since then, it has been getting progressively worse. I am sorry you had to endure this and anyone else that has to. I am glad that we have a place to come talk to others and support each other.
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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1273
User's local time:
2017 Dec 14 - 7:20 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Mon Jul 24, 2017 2:17 pm    Post subject: Reply with quote

Welcome,

As soon as I stopped gluten and dairy and started on a serious VitD3 and Magnesium regimen I saw results in the pain department really quickly (my VitD was so low it was pathetic).....that aspect right there kept me focused on maintaining healing at all costs.

Gabes link is really good and there are lots of Sticky posts to aid in further questions that we don't get answers to from Doctors.

Cheers
Erica
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 891
User's local time:
2017 Dec 14 - 9:20 AM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Mon Jul 24, 2017 5:03 pm    Post subject: Reply with quote

HI, Jolene. I don't have much to add except welcome to our internet family. You have come to the absolute best place for advice, guidance and friendship. Best wishes on your journey to healing. It's easy to get discouraged, but healing will happen. Read the success stories and you'll find hope even on your darkest MC days.
_________________
Marcia
------------
My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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Jodybug

unknown IP

Joined: 23 Jul 2017
Posts: 18
User's local time:
2017 Dec 14 - 9:20 AM


Food Intolerances : Still learning. Allergic to soy. Everything seems to make my stomach hurt.
Location: Florida

PostPosted: Fri Jul 28, 2017 8:09 pm    Post subject: Reply with quote

Hi Erica and Marcia. Nice to meet everyone and so grateful for all the feedback!
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jessica329
Adélie Penguin
Adélie Penguin


Joined: 11 Oct 2012

Posts: 146
User's local time:
2017 Dec 14 - 10:20 AM


Food Intolerances : Dairy, Gluten
Location: CT

PostPosted: Sat Jul 29, 2017 9:14 am    Post subject: Reply with quote

Keep at it with the diet! I had to cut ALL grains. I follow the Autoimmune Paleo Protocol. I very recently got lazy, ate a lot of crap and I am paying for it dearly today. Prior to doing the protocol, I was gluten-free but still having flare-ups.
_________________
Jessica
Lymphocytic colitis August 2012
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jessica329
Adélie Penguin
Adélie Penguin


Joined: 11 Oct 2012

Posts: 146
User's local time:
2017 Dec 14 - 10:20 AM


Food Intolerances : Dairy, Gluten
Location: CT

PostPosted: Sat Jul 29, 2017 9:18 am    Post subject: Reply with quote

Here's the link if you're interested. I did NOT do any of the organ meats, fermented foods, supplements or herbs recommended. I basically eat from the list of foods on the pdf. I stay away from leafy greens (they seem to aggravate my insides), cook all my veggies well and always eat high carb tubers/roots (sweet potatoes, yuca, etc).
_________________
Jessica
Lymphocytic colitis August 2012
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jessica329
Adélie Penguin
Adélie Penguin


Joined: 11 Oct 2012

Posts: 146
User's local time:
2017 Dec 14 - 10:20 AM


Food Intolerances : Dairy, Gluten
Location: CT

PostPosted: Sat Jul 29, 2017 9:19 am    Post subject: Reply with quote

https://www.thepaleomom.com/start-here/the-autoimmune-protocol/
_________________
Jessica
Lymphocytic colitis August 2012
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