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In Remission and Wonder Why

 
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Hazelbird
Adélie Penguin
Adélie Penguin


Joined: 02 Dec 2016

Posts: 57
User's local time:
2017 Dec 14 - 10:18 AM


Food Intolerances : Gluten, tomato products, coffee, legumes except chickpeas, fresh fruit especially citrus and except bananas, canned pineapple, sugar of all kinds, uncooked veggies, dairy except Greek yogurt, garlic, vinegars...more?
Location: Canada

PostPosted: Mon Sep 04, 2017 1:54 pm    Post subject: In Remission and Wonder Why Reply with quote

For the last few weeks I have been in remission......if there is such a thing with LC. My gut and BMs are more normal than they've been in years. And I don't know why!

I do not follow the diet recommended here (I'm not a meat eater), I don't take any drugs, and if I'm being honest, I haven't done all the reading and research I should have done. I just listened to my body.

I eat some dairy (Greek yogurt daily and cheese once a week), eggs, tofu, many fruits and veggies, lots of fibre, hemphearts, chia seeds, walnuts, almonds, even chickpeas and black beans. Lately, it doesn't matter what I eat (although I remain gluten-free), my BMs are normal with no pain, gas, anything. Why?!

The only factor I can determine might be having a positive effect is the lack of stress in my current living situation. I am content and at ease. Is this enough to make that big a difference? If so, I am amazed at the mind-body connection!

I know that this is not a permanent cure but I'm sure enjoying being normal while it lasts!
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Hazel
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sunny
Rockhopper Penguin
Rockhopper Penguin


Joined: 17 Jan 2008

Posts: 694
User's local time:
2017 Dec 14 - 7:18 AM



Location: Washington

PostPosted: Mon Sep 04, 2017 8:59 pm    Post subject: Reply with quote

Hazel....my first thought was, "Don't look a gift horse in the mouth!" Hopefully, someone with more knowledge will chime in with some ideas for you...
Sunny
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"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
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Hazelbird
Adélie Penguin
Adélie Penguin


Joined: 02 Dec 2016

Posts: 57
User's local time:
2017 Dec 14 - 10:18 AM


Food Intolerances : Gluten, tomato products, coffee, legumes except chickpeas, fresh fruit especially citrus and except bananas, canned pineapple, sugar of all kinds, uncooked veggies, dairy except Greek yogurt, garlic, vinegars...more?
Location: Canada

PostPosted: Wed Sep 06, 2017 8:33 am    Post subject: Reply with quote

That's so true, Sunny! I'm enjoying every minute of this normality. My gratitude journal is full of thank yous. Very Happy
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Hazel
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7264
User's local time:
2017 Dec 15 - 1:18 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Sep 07, 2017 1:01 pm    Post subject: Reply with quote

I agree with sunny, dont overthink it! just go with the flow, embrace what is.

hope the wellness and improvements keep coming
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Hazelbird
Adélie Penguin
Adélie Penguin


Joined: 02 Dec 2016

Posts: 57
User's local time:
2017 Dec 14 - 10:18 AM


Food Intolerances : Gluten, tomato products, coffee, legumes except chickpeas, fresh fruit especially citrus and except bananas, canned pineapple, sugar of all kinds, uncooked veggies, dairy except Greek yogurt, garlic, vinegars...more?
Location: Canada

PostPosted: Sat Sep 09, 2017 6:22 am    Post subject: Reply with quote

Thanks, Gabes. I'll try to do that without going crazy and eating too many off-LC-diet foods. It is tempting when meals have been restricted for some time.

Bottom line for me: no gluten ever and no tomato products.

Wishing the same improved health for everyone here!
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Hazel
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:18 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Sep 09, 2017 10:02 am    Post subject: Reply with quote

Hazel,

There's a chance that if you continue to avoid gluten (so that you don't get leaky gut) you may be able to continue to eat most other foods without any problems. Good luck.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 891
User's local time:
2017 Dec 14 - 9:18 AM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Sat Sep 09, 2017 1:27 pm    Post subject: Reply with quote

Enjoy it, Hazel! I hope it lasts!
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Marcia
------------
My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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Zizzle
King Penguin
King Penguin


Joined: 22 Jul 2010

Posts: 3484
User's local time:
2017 Dec 14 - 10:18 AM


Food Intolerances : gluten, dairy, soy, sesame seeds, buckwheat, amaranth, walnuts, peppers, CORN!

PostPosted: Sat Sep 16, 2017 10:28 pm    Post subject: Reply with quote

I'm also in a bizarre spontaneous remission from my LC. First one in 7 years! It hasn't been bad recently, just 2-3 D per day, but I clearly have some obvious dysbiosis going on (malodorous, sometimes orange), which I treat with probiotics with varying degrees of success. I should mention I'm also in a clinical trial of non-psychoactive THC for my skin rashes since February, and it's had the added benefit of calming the MC, and calming reactions to food, but never full remission. The only things that I can associate with this sudden change are:

Vacation in Cooperstown, NY where I ate fresh picked apples and rasberries non-stop, sometimes 4 apples/day with the peel on, plus lots of salads and watermelon. Normally this would go right though me, but instead I think I developed a tolerance, and now a NEED for insane amounts of fiber! If I don't eat a ton of fruit and veggies, I won't go to the bathroom now!

I stopped taking LDN for 4 days to try and force a "reset" since it's no longer helping my autoimmune skin rash. By day 2 I had perfect normans, sore throat and mild congestion. By day 4 I was a cranky, depressed mess, so I got back on and I'm back to my old normal (been on LDN since 2014). But the normans keep coming even though I'm back on the LDN.

I'm experimenting with not taking my probiotics, and it makes no difference now. Odor and consistency is normal, no matter what I eat or what I take! It's crazy!!

Maybe I'm battling a cold or Epstein Barr Virus reactivation, so immune system is busy elsewhere?

But sadly, the MC remission has no effect on the Dermatomyositis rashes. Makes no sense!!
_________________
1987 Mononucleosis (EBV)
2004 UCTD post-partum
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2012 Dermatomyositis
2013 Modified Paleo Diet
2014 Low Dose Naltrexone
2015 Megaspore and Culturelle probiotics
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Dec 14 - 9:18 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Thu Sep 21, 2017 8:35 am    Post subject: Reply with quote

Hey Zizzle,

I too found that I need more fiber and take psyllium seed powder daily plus a huge salad at lunch. Not to confuse newbies here. This is a no no when healing. However I was having WD to mud daily still and the fiber seemed to give me normans...plus the multiple minerals on board to aid in healing. Glad to know you are doing good! keep us updated on the THC. Always interested in that. My uncle was diagnosed in 2015 with Stage lV Colon CA with mets to lung and liver. He had one round of chemo and said screw this. I'll die in no time. So he went off to Colorado to obtain his "meds" and is still kicking. I know he does the CBD oil and edibles. Beyond that I don't know much....very interesting though.
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Vanessa
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HockeyMom
Adélie Penguin
Adélie Penguin


Joined: 01 Oct 2011

Posts: 190
User's local time:
2017 Dec 14 - 8:18 AM


Food Intolerances : Gluten, dairy, soy, rice, chicken, almond, etc/etc/etc/etc...
Location: Colorado

PostPosted: Thu Sep 21, 2017 9:50 am    Post subject: Reply with quote

Hey Vanessa-
I live in Colorado, so ALL of this stuff is available here but...is there some reason y'all can't buy CBD oil outside of Colorado (and Oregon, etc...)?? It's my understanding that it has no THC in it right?? You can buy it here everywhere (bought mine at a farmers market here, son's animal food shop sells it for dogs..). You have to go to licensed shops for edibles and such, but can buy CBD oil anywhere. I tried it all summer and didn't notice much with the CBD oil. Was just hoping for better sleep actually...

Laine
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"Do what you can, with what you have, where you are"-Teddy Roosevelt
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Dec 14 - 9:18 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Thu Sep 21, 2017 9:59 am    Post subject: Reply with quote

Hey Laine,

I think we have to obtain it from Head Shops here, but I think it is legal. I was looking into it when I was weaning off of a benzo but all the info seemed to rattle my brain and at that time I was very scared to put anything in my mouth that I wasn't sure about. I know that in my uncle's case, he requires some of the THC properties, so he is high some of the time. He also takes a risk when traveling back from getting his supply!

On the benzo buddies forum, people had luck with a consultant named Ezra...I know, how perfect is that. He knew his stuff apparently and people had a lot of luck with just the CBD oil for their anxieties and sleep issues. Maybe you just need a different more potent CBD similar to Charlotte's Web? and magnesium of course (you know I had to say that to get your goat) Laughing
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Vanessa
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