Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       

You can get your life back
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
SearchSearch The Archives of This Discussion Board
I am new to this -

Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Main Message Board
 View previous topic :: View next topic  
Author Message

unknown IP

Joined: 18 Sep 2017
Posts: 11
User's local time:
2017 Dec 14 - 8:18 AM

Location: Denver

PostPosted: Mon Sep 18, 2017 8:30 am    Post subject: I am new to this - Reply with quote

Hi All -

Microscopic colitis is my new diagnosis. The Bufosonide is doing nothing. I don't know where to start and am a food and wine writer !! - and ONLY eating lamb, rice and sweet potatoes makes me want to hang it up!!

Where do I start?

What should be my first step?

I can tell that my (young) doc has few ideas, though I'm going to go see her again soon.

Thank you,

Back to top
Site Admin
Site Admin

Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:18 AM

Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Sep 18, 2017 10:34 am    Post subject: Reply with quote

Hi Cathie,

Welcome to our Internet family. Yes, this can be an overwhelming experience, but you can sort it out by taking life a day at a time until you are in remission. For some patients, budesonide does not work because one or more of the food or drug sensitivities are so potent that until you remove them from your diet and your gut heals a bit from the inflammation damage, they are too much for the drug to handle.

You are on track with your recovery diet, but it can take some time for the inflammation to settle down, so you may continue to react for a while. The first thing to do is make sure that you are not taking a medication that can trigger MC. That list includes most antibiotics, NSAIDs, PPIs, SSRIs, SNRIs, amitriptyline, bisphosphonates, and others. It you're taking any of these, you may have to stop in order to control your symptoms. But in that case, avoiding that/those drugs might be the only changes you would have to make to achieve and stay in remission.

If you're not taking any of them, then the diet should bring remission, given some time to allow it to start healing the gut. If you want to be sure about which foods you need to avoid, a stool test at EnteroLab will provide that information.

As you have found, his may be a real challenge for your field of expertise, but when one door closes, another opens. You may turn out to be the world's foremost authority on food and wines for people with food sensitives. There is a rapidly growing demand for knowledgeable writers who can write (with the personal experience to back it up) for the growing audience of people with food sensitivities.

Again, welcome aboard, and please feel free to ask anything.


It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 16 Oct 2011

Posts: 2005
User's local time:
2017 Dec 14 - 9:18 AM

Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Mon Sep 18, 2017 2:58 pm    Post subject: Reply with quote

Do you have a copy of TEx's book? See link at upper right hand corner. It is the only book on MC.

Back to top
Erica P-G
Rockhopper Penguin
Rockhopper Penguin

Joined: 08 Mar 2015

Posts: 1273
User's local time:
2017 Dec 14 - 7:18 AM

Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Mon Sep 18, 2017 4:49 pm    Post subject: Reply with quote

Welcome Cathie,

I'd start here.... http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22328 Gabes has complied a great starting point Stage One eating plan.....then I'd look at this http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22331 to make sure you are on track with Magnesium and Vit D3.

From there getting Tex's book and taking deep breath is where I'd start right now.

You can do this!
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Back to top
Adélie Penguin
Adélie Penguin

Joined: 13 Oct 2014

Posts: 67
User's local time:
2017 Dec 14 - 4:18 PM

Food Intolerances : Gluten, Caffeine

PostPosted: Sun Sep 24, 2017 2:44 am    Post subject: Reply with quote

My two cents:

1) Quit all caffeine (coffee, tea, cola). My immune system can’t handle caffeine at all, but it generally speeds up the digestion for all people, and worsens diarrhea.
2) Get a prescription for cholestyramine or colesevelam. This is a fairly innocent drug that binds bile (inflammation causes excess bile which causes diarrhea). It also slows down colon transit and binds allergens/food additives/toxins. There are several threads on cholestyramine on this site. It doesn’t work for everybody, but a lot. Research has shown that about half of us with MC have bile acid malabsorption and excess bile acids in the colon.

... and no gluten, of course. My daughter just got back very positve celiac tests this week. Celiac and MC seem to be almost two sides of the same coin.

Good luck! I can say that with effort quite a few of us have managed to get the MC under control, but it takes time for the gut to heal. After 20 years with diarrhea I’ve been off all medication for a while now, even the cholestyramine.

Life's hard and then you die
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Main Message Board All times are GMT - 6 Hours
Page 1 of 1

Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page

Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright © 2005–2017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery