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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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Cat

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Joined: 18 Sep 2017
Posts: 3
User's local time:
2017 Oct 18 - 5:59 AM



Location: Denver

PostPosted: Mon Sep 18, 2017 8:30 am    Post subject: I am new to this - Reply with quote

Hi All -

Microscopic colitis is my new diagnosis. The Bufosonide is doing nothing. I don't know where to start and am a food and wine writer !! - and ONLY eating lamb, rice and sweet potatoes makes me want to hang it up!!

Where do I start?

What should be my first step?

I can tell that my (young) doc has few ideas, though I'm going to go see her again soon.

Thank you,

Cathie
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Cathie
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30583
User's local time:
2017 Oct 18 - 6:59 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Sep 18, 2017 10:34 am    Post subject: Reply with quote

Hi Cathie,

Welcome to our Internet family. Yes, this can be an overwhelming experience, but you can sort it out by taking life a day at a time until you are in remission. For some patients, budesonide does not work because one or more of the food or drug sensitivities are so potent that until you remove them from your diet and your gut heals a bit from the inflammation damage, they are too much for the drug to handle.

You are on track with your recovery diet, but it can take some time for the inflammation to settle down, so you may continue to react for a while. The first thing to do is make sure that you are not taking a medication that can trigger MC. That list includes most antibiotics, NSAIDs, PPIs, SSRIs, SNRIs, amitriptyline, bisphosphonates, and others. It you're taking any of these, you may have to stop in order to control your symptoms. But in that case, avoiding that/those drugs might be the only changes you would have to make to achieve and stay in remission.

If you're not taking any of them, then the diet should bring remission, given some time to allow it to start healing the gut. If you want to be sure about which foods you need to avoid, a stool test at EnteroLab will provide that information.

As you have found, his may be a real challenge for your field of expertise, but when one door closes, another opens. You may turn out to be the world's foremost authority on food and wines for people with food sensitives. There is a rapidly growing demand for knowledgeable writers who can write (with the personal experience to back it up) for the growing audience of people with food sensitivities.

Again, welcome aboard, and please feel free to ask anything.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1928
User's local time:
2017 Oct 18 - 6:59 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Mon Sep 18, 2017 2:58 pm    Post subject: Reply with quote

Do you have a copy of TEx's book? See link at upper right hand corner. It is the only book on MC.

and...Welcome!
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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1225
User's local time:
2017 Oct 18 - 4:59 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Mon Sep 18, 2017 4:49 pm    Post subject: Reply with quote

Welcome Cathie,

I'd start here.... http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22328 Gabes has complied a great starting point Stage One eating plan.....then I'd look at this http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22331 to make sure you are on track with Magnesium and Vit D3.

From there getting Tex's book and taking deep breath is where I'd start right now.

You can do this!
Erica
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To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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Tor
Adélie Penguin
Adélie Penguin
Norway

Joined: 13 Oct 2014

Posts: 57
User's local time:
2017 Oct 18 - 1:59 PM


Food Intolerances : Gluten, Caffeine

PostPosted: Sun Sep 24, 2017 2:44 am    Post subject: Reply with quote

My two cents:

1) Quit all caffeine (coffee, tea, cola). My immune system can’t handle caffeine at all, but it generally speeds up the digestion for all people, and worsens diarrhea.
2) Get a prescription for cholestyramine or colesevelam. This is a fairly innocent drug that binds bile (inflammation causes excess bile which causes diarrhea). It also slows down colon transit and binds allergens/food additives/toxins. There are several threads on cholestyramine on this site. It doesn’t work for everybody, but a lot. Research has shown that about half of us with MC have bile acid malabsorption and excess bile acids in the colon.

... and no gluten, of course. My daughter just got back very positve celiac tests this week. Celiac and MC seem to be almost two sides of the same coin.

Good luck! I can say that with effort quite a few of us have managed to get the MC under control, but it takes time for the gut to heal. After 20 years with diarrhea I’ve been off all medication for a while now, even the cholestyramine.

Tor
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Life's hard and then you die
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