Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
New Cardiologist wants me back on Budesonide!

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Main Message Board
 View previous topic :: View next topic  
Author Message
sunny
Rockhopper Penguin
Rockhopper Penguin


Joined: 17 Jan 2008

Posts: 682
User's local time:
2017 Oct 18 - 4:58 AM



Location: Washington

PostPosted: Thu Sep 21, 2017 9:37 pm    Post subject: New Cardiologist wants me back on Budesonide! Reply with quote

I was very impressed with my new Cardiologist today...he's very caring & listened, asked questions, thought a while, then asked more questions etc.
Apparently my heart function has really diminished and he said from his point of view he'd prefer that I stay on Budesonide even with the side effects...anything to stop the diarrhea. He said , "You just HAVE to stop this diarrhea! you can't just live with it!"He's glad I see a GI doc next week...

It's the balance of fluids that is so crucial for me, impacting heart, kidneys, and lungs.
I have Pulmonary Hypertension ( darn!)and my heart is just too weak to pump fluid so that's why the enormous "giraffe knee "ankles.
He's looking at making slow changes starting with a different diuretic, then blood test for kidney function. And then a possible hospital stay of 2-3 days to administer Inotropes to stimulate & increase the force of contraction of my heart .
He also mentioned the new drug, Entresto ,as another option to help prolong my life...gulp! That commercial with the song..." The sun will come out tomorrow..." may become my theme song...if you've seen the commercial you will understand...
Sunny
_________________
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Back to top
Deb
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 20 Nov 2010

Posts: 1542
User's local time:
2017 Oct 18 - 6:58 AM


Food Intolerances : Gluten, still determining others
Location: Minnesota

PostPosted: Fri Sep 22, 2017 5:46 am    Post subject: Reply with quote

Hugs, Sunny! I pray that your doctors can help figure this out and you feel better soon. Deb big big hug
Back to top
Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Oct 18 - 6:58 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Fri Sep 22, 2017 6:10 am    Post subject: Reply with quote

Sunny!

Thank you for the update. Holy cow. Thats a lot to take in. I'm glad you like your cardiologist. That goes a long way. Holding you in healing thoughts.
_________________
Vanessa
Back to top
sunny
Rockhopper Penguin
Rockhopper Penguin


Joined: 17 Jan 2008

Posts: 682
User's local time:
2017 Oct 18 - 4:58 AM



Location: Washington

PostPosted: Fri Sep 22, 2017 8:42 pm    Post subject: Reply with quote

Deb & Vanessa....thanx so much for the encouragement! It was a shock to learn I now have Pulmonary Hypertension....I've been reading about that & looking for some positives to hang onto....still looking!
Sunny
_________________
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Back to top
Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1225
User's local time:
2017 Oct 18 - 4:58 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Mon Sep 25, 2017 5:21 pm    Post subject: Reply with quote

Don't forget to really research the Magnesium and VitD3 protocol since this is your heart that is giving you tell tale signs.....

Tex has talked alot about how we need lots of Magnesium to get hundreds of cells to talk to one another properly....this is just another area to put the focus....the more chemical drugs you partake in the potential for more magnesium loss and more side effects and more deterioration of the heart. My opinion....but I can't help but throw this out there for further investigation since your Cardiologist seems to be listening and Magnesium can't hurt you.

Ever since the Magnesium took care of my heart palpitations two years ago and then I read up on it at the NIH website....I am completely convinced that the electrons were beginning to not work right because I didn't have enough Mag/VitD3 balance in my life, plus I was marching my way thru menopause which didn't help.

I can tell even now when my Mag is low, I get hints of head aches, and if I ignore it I can get the heart flutters again....so I heed its warning now and compensate for it and I feel good again.

Hugs, I just want you to be healthy and happy Very Happy
Erica
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Back to top
sunny
Rockhopper Penguin
Rockhopper Penguin


Joined: 17 Jan 2008

Posts: 682
User's local time:
2017 Oct 18 - 4:58 AM



Location: Washington

PostPosted: Mon Sep 25, 2017 8:34 pm    Post subject: Reply with quote

Erica,
Thanx for the reminder...I do make up a big jug of ReMag & ReMyte, lemon juice & sea salt....but sometimes I forget to get more than one glass a day...also take 200 mg Doctors Best twice daily...
Just read one of Tex's posts about needing more Vit D when taking Entocort...oh! Good to know.
I've been so sick past 2days I missed all my morning meds so that threw me off too...so I appreciate your reminder!
Sunny
_________________
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30583
User's local time:
2017 Oct 18 - 6:58 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Sep 25, 2017 9:27 pm    Post subject: Reply with quote

Sunny,

If you're under a cardiologist's care, it might be a good idea to get his or her opinion if you're going to take that much magnesium. It's possible to take too much with certain heart conditions. It's probably OK in your case but I'd rather he or she knew how much you're taking, especially with the pulmonary hypertension diagnosis. Magnesium may lower your blood pressure.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
sunny
Rockhopper Penguin
Rockhopper Penguin


Joined: 17 Jan 2008

Posts: 682
User's local time:
2017 Oct 18 - 4:58 AM



Location: Washington

PostPosted: Tue Sep 26, 2017 9:59 pm    Post subject: Reply with quote

Tex..thanx for that warning...!i do have low BP...100/68 to 112/68....
Perhaps it's the mag...didn't realize mag could lower it....there's so much emphasis on mag on Dr Deans emails, I've been more diligent in taking it.... so think I'll relax on that a bit till I can see cardiologist Oct 4...

I also have had Afib in the past so trying to keep myself in rhythm.
Thanx for having my back!
Sunny
_________________
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Back to top
Patricia
Adélie Penguin
Adélie Penguin


Joined: 13 Nov 2014

Posts: 214
User's local time:
2017 Oct 18 - 7:58 AM


Food Intolerances : gluten, dairy, eggs, soy, carrots, celery, sweet potato, fructose, sugar, nuts, coconut milk
Location: Pittsburgh

PostPosted: Wed Sep 27, 2017 9:03 am    Post subject: Reply with quote

Oh Sunny,

I am so sorry to hear about all your problems, but glad that you found a caring cardiologist.

Sending you lots of love and healing thoughts!!

Patricia pulsing hearts big big hug
_________________
Be gentle with yourself. Be kind to yourself. You may not be perfect, but you are all you’ve got to work with.
- Bhante Gunaratana
Back to top
Janie
Adélie Penguin
Adélie Penguin
United States

Joined: 06 May 2016

Posts: 245
User's local time:
2017 Oct 18 - 4:58 AM


Food Intolerances : Gluten, Dairy, Soy and chicken eggs so far
Location: Simi Valley, Ca.

PostPosted: Wed Sep 27, 2017 10:14 am    Post subject: Reply with quote

I hope you feel better as each day passes. I agree with Tex on the Magnesium. We heart patients have to run all the supplements we take past the Cardiologist for our heart concerns.
Here is a couple of hugs big big hug big big hug
Janie
_________________
Janie
Back to top
Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Oct 18 - 6:58 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Wed Sep 27, 2017 11:07 am    Post subject: Reply with quote

Hey Sunny,

Thinking of you! Tex is right, maybe let the Dr.'s know, (assuming they'll know anything about mag and the benefits) but I feel magnesium is more of a balancer than anything. Your kidneys are in a delicate state if you can't get the fluid off of you properly (swelling in your legs). If I were you (which I know I am not Cool ) I would keep up your big jug of ReMag and ReMyte and add on the topical mag with it so your kidneys aren't overworked.....Just my two cents. let us know how your appt. goes!
_________________
Vanessa
Back to top
sunny
Rockhopper Penguin
Rockhopper Penguin


Joined: 17 Jan 2008

Posts: 682
User's local time:
2017 Oct 18 - 4:58 AM



Location: Washington

PostPosted: Wed Sep 27, 2017 9:10 pm    Post subject: Reply with quote

Patricia,
Well, it cheered me so to get that fun hug and read your kind words,of love and healing! Thanx so much...

Janie,
Thanx for the reminder to run all my supplements by my Cardiologist...I have an appointment tomorrow with a Nurse Practioner form the Heart Failure Clinic to discuss all the things there is no time to talk over with the doctor....I can get some answers from her about the magnesium I'm sure. And thanx for the extra hugs...didn't realize you were a heart patient too so I know you understand!

Vanessa,
I hadn't focused on the kidneys as much as my heart even though I know they are struggling....so thanx for bringing that up. This morning I was thinking of the topical mag and that would help taking with not taking in too much fluid....and then you write and seem to confirm my idea! Love that when it happens! So serendipitous! Even though you aren't me, you think about me with healing, helpful thoughts and I surely do appreciate that!
_________________
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Main Message Board All times are GMT - 6 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright © 2005–2017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery