Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
kidney and creatinine score

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Main Message Board
 View previous topic :: View next topic  
Author Message
brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1930
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Sat Sep 23, 2017 11:48 am    Post subject: kidney and creatinine score Reply with quote

My creatinine score was high and bun was off in recent functional med doc blood run.
Doc asked me a lot of questions and I told him it was lab error.

Doc had me get another round of bloodwork done.

Latest batch came up with higher creatinine.

Creatinine score of 1.62. Bun of 27.

Functional medicine doc told me to go vegan and urgent to see nephrologist as I was in 3rd stage chronic kidney disease.

Had appointment with nephrologist. He said my scores are alarming at my age of 56.

BOTH MY BOYFRIEND AND I THINK THE SCORES ARE DUE TO LIFTING WEIGHTS AND HIGHER PROTEIN INTAKE. I FEEL BETTER THAN I HAVE IN THE LAST 10 YEARS. I ALSO THINK I HAVE BEEN UNDERHYDRATING.

I lifted heavy weights the day before each of the lab works and I had 3 meatballs for breakfast.

I have no predisposing factors for kidney disease. Not overweight, no high blood pressure, no diabetes, no heart disease, parents still alive in their 80's. Only risk factor I have is female.
Nephrologist asked a lot of questions but told me very unusual to have my scores without the risk factors but I need to take this seriously. Nephrologist said my kidney was operating at 30%.

I had the "affordable healthcare" conversation with the Nephrologist. Doc, the cheapest "Obama Affordable Healthcare" that I could purchase came with an $7800 deductible. Can we do the cheapest testing first? He said I need to take this serious due to my age but the kidney biopsy down the road might be optional. What he said was if they can't figure anything out then a kidney biopsy is only helpful 10% of the time. I guess kidney biopsies are only helpful when they suspect something already to confirm what they already suspect.

Anyways, he has me eliminating all supplements and I have another blood draw in a week and he is testing me for everything under the sun...std's, hiv, various types of hep and a lot of other things. He said supplements can be commonly adulterated in the US and only by ones that have USP certification.

I'm almost certain my scores are due to the "lifting" and eating more protein than most women.

I'm not going to "lift" this week and I decided I'm not going to eat any protein the 1-2 days before the blood draw.I think I will do the blood draw a little later in the day when I am better hydrated than first thing in the morning.

In the meantime, I'm cutting back protein, upping fats. Veggies are still problematic due to fiber. I've tripled my water and he wants to me to sip stock/broth as he said salt helps the water upload to the body.

There is very little info on the web. A lot of it is "hucksterish." The forums are useless as they owned by the dialysis manufacturers. There is no "free" conversation on the forums.

Interesting I came across several studies that the ketogenic diet stops kidney failure and those that adopt the ketogenic diets don't need dialysis. I think this is the info that the dialysis manufacturers don't want to get out.

I was in the waiting room for 1-1/2 hours and I don't fit the typical kidney patient description. Everyone that walked in was 80+ and had the wheeled walker. I was the only person that walked on my own. I was in better shape than the office staff. I also feel better than I have in 10 years.

Forgot to mention my kidneys were ultra sounded and they are normal size (not shrunken) and I have no blockages or stones.

There is some discussion on the paleo sites that those that "lift" and eat more protein will have higher creatinine scores but that it is not necessarily representative of kidney failure. I found some studies that say the same.
Back to top
brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1930
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Sat Sep 23, 2017 11:54 am    Post subject: Reply with quote

Forgot to mention I listed on the intake paperwork that I lifted 3x per week and that I ate more protein than most women. He mumbled that the protein might have something to do with it. On a humerous note he gave me a bone crushing hand shake when he came in and I gave him a bone crushing hand shake back.
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Sep 23, 2017 1:11 pm    Post subject: Reply with quote

Hi brandy,

I agree that it could be the high protein intake. Dehydration would have that effect also. How much magnesium are you taking/using? I had high creatinine, (low EGFR) when I had the magnesium deficiency episode. Since I recovered, I've had to cut my magnesium supplement way down because too much magnesium will overwork the kidneys and eventually they will not be able to keep up. How's your EGFR? High, I assume, since that's calculated from the creatinine result.

It could be due to the accumulated effects of all three issues.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1930
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Sat Sep 23, 2017 1:43 pm    Post subject: Reply with quote

Hi Tex,

Yes, 400 mg of mag glycinate orally. There was awhile I was taking 600 mg as I was confused by the magnesium math.

I'm not sure of the EGFR. I'm assuming it is bad.

So I should not take epsom salt baths either at least for a week? I typically don't take oral and transdermal on same day.

Did your creatinine level go down?
Back to top
sunny
Rockhopper Penguin
Rockhopper Penguin


Joined: 17 Jan 2008

Posts: 683
User's local time:
2017 Oct 22 - 12:22 AM



Location: Washington

PostPosted: Sat Sep 23, 2017 2:25 pm    Post subject: Reply with quote

Brandy,
I'm considered to be in Stage 3 kidney disease and am in that category of "older".
One of the ideas my Nephrogist gave me was to do my kidneys a " favor" by lying down twice a day to allow my kidneys to do their job of moving fluid more easily....simple idea, but hard for me to stop what I'm doing and go lie down...twice!
But when I did this, my numbers changed dramatically.....you might try that before your next appointment along with the other things you mentioned.....
Hoping it is a result of lifting and eating more protein than most women. My daughter lifted and actually won some state contests in Oregon for her age and weight groups and she also ate more protein than most gals ...
Sunny
_________________
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
Back to top
brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1930
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Sat Sep 23, 2017 2:27 pm    Post subject: Reply with quote

Thanks Sunny for the encouragement. I will build in some "resting/laying down" in my schedule.

Tex, I think my GFR is 35 using the kidney foundation website.

I'm age 56, creatinine of 1.62, and caucasian female if anyone wants to check my numbers.

I think something is really goofy with my creatinine score--either protein, magnesium, hydration or lifting. I'm looking at Cleveland Clinic site and GFR of 29 you start talking about dialysis and preparing your patient for dialysis. I literally have no symptoms. I think I"m going on a fitness walk (with some water) to relieve the stress of this.
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Sep 23, 2017 2:32 pm    Post subject: Reply with quote

Brandy wrote:
Did your creatinine level go down?


Yes.

Brandy wrote:
So I should not take epsom salt baths either at least for a week? I typically don't take oral and transdermal on same day.


I would think the Epsom salts baths would be OK, especially if done on days when you don't take an oral magnesium supplement. Unless you're grossly overweight though (which I'm pretty sure you aren't), 300 mg of magnesium, divided up with meals, would probably be plenty, and that would be easier on your kidneys. Your diet may already contain a lot of magnesium.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1930
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Sat Sep 23, 2017 2:36 pm    Post subject: Reply with quote

Tex--did you see my post above. I think we posted at the same time. My weight is 133. Blood pressure 122/82. BMI 21.6
Back to top
Deb
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 20 Nov 2010

Posts: 1543
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : Gluten, still determining others
Location: Minnesota

PostPosted: Sun Sep 24, 2017 3:38 am    Post subject: Reply with quote

I'm sure this is all pretty unsettling Brandy. I hope you can figure out what is going on. Deb
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Sep 24, 2017 8:07 am    Post subject: Reply with quote

Brandy,

Yes, I missed that post. That's what my EGFR was when I had the magnesium deficiency episode and I believe it was in the upper 30s when I had the arrythmia that I suspect was caused by too much magnesium overworking my kidneys (I was taking 600 mg of magnesium every day at the time).

Have you read this article at the link below? Look at the numbers in the report in the image there. Your numbers are still relatively low, but they're on their way. And notice the date shows this as an older but recently updated article.

High Protein Diet & Creatinine

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1930
User's local time:
2017 Oct 22 - 2:22 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Sun Sep 24, 2017 2:31 pm    Post subject: Reply with quote

Deb--thanks for thinking of me. I'm at peace with things now. I think I'll be able to get improved numbers on next test using Sunny's technique, going vegan for 2 days before test and not lifting for a week before test and hydrating well. I've also cut back my protein to tiny portions.

Tex--good link. Thanks!
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Main Message Board All times are GMT - 6 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright 20052017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery