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Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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Newbie with humble thanks for this forum....and questions of

 
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persevere

United States

Joined: 09 Sep 2017
Posts: 3
User's local time:
2017 Oct 18 - 6:47 AM


Food Intolerances : Many, many always finding more

PostPosted: Mon Sep 25, 2017 6:31 pm    Post subject: Newbie with humble thanks for this forum....and questions of Reply with quote

Thank you all so much for the phenomenal information and wisdom collectively posted on this forum. My gosh, when the GI doc said I have microscopic colitis, I thought he meant I have just a little bit. Just take citracel 2x day. End of story. Well, that made me feel worse.
My GP didn't have a clue. BUT I have been looking for answer to wd for over a year.
Now I. Have a clue. I've been gf forever, one HLA gene, not celiac, but so gluten sensitive, that if I get gluten wd and aching inevitability follow . Many food sensitivities, so the histamine issue fits. MTHFR compound heterozygous in the mix making b vits even more problematic. Getting the right form is the challenge.
Just bought mag spray.
Chicken, rice, green beans, collagen/ bone broth. A few almonds, a little jelly. Some gf toast.

When I add something else either reflux is triggered and I spend the night with pepsid and baking soda water. But I still feel ravenously hungry. Is this gastritis? And or the dreaded Wd later. The exhaustion is the most frustrating.
I am on a statin and a betablocker and eliquis. All can add fatigue. And weight which is just going up and up.
What's the best thing to help myself? I had the Biotec food assay.skin pricks for allergies and sensitivities.
Whey is neither casein or lactose, right? I crave creamy and salty.
Any way. It's overwhelming.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30583
User's local time:
2017 Oct 18 - 6:47 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Sep 25, 2017 7:43 pm    Post subject: Reply with quote

Hi,

Welcome to our Internet family. Yes it can be overwhelming. We have to kind of take life a day at a time until we get our act together.

you wrote:
Is this gastritis?


Good question. It may just be a sign of low vitamin D or a side effect of a med. Large doses of vitamin D (8,00010,000 IU) have been shown to treat/prevent reflux/GERD.

If you are sensitive to casein, you may also be sensitive to one of the proteins in whey.

you wrote:
What's the best thing to help myself? I had the Biotec food assay.skin pricks for allergies and sensitivities.


None of those tests detect food sensitivities in the gut. Only the IgA antibody stool tests at EnteroLab will accurately and reliably (and repeatably) detect the most common food sensitivities. Ordering the A1 and C1 test Panels is the easiest way to be able to confidently select foods for a recovery diet if you are reacting. If you are already in remission then you can probably skip those tests.

Some MC patients react to statins and betablockers. But don't stop taking them without working this issue out with your cardio doctor. You might not be having any problems with them. Or, if you are, you might be able to change medications. As a stroke patient, I take both, but I seem to do OK with them.

If you feel that you have histamine problems, be sure that you do not keep any leftover chicken in the frig. It has to be frozen (at zero degrees F) in order to stop histamine from increasing.

Again, welcome aboard, and please feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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persevere

United States

Joined: 09 Sep 2017
Posts: 3
User's local time:
2017 Oct 18 - 6:47 AM


Food Intolerances : Many, many always finding more

PostPosted: Tue Sep 26, 2017 9:39 am    Post subject: Reply with quote

Thanks for the quick reply. Will look into the Enterolab right away. And vit d. Thinking h2 blocker for awhile. Had been on PPI for a long time, actually too much bile( during endoscopy). A big concern is messing up and making things worse. Like,oh yeah, not the canned chicken I use for chicken salad.....
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