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tcmarv62
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PostPosted: Sun Nov 05, 2017 2:25 pm    Post subject: Budesonide intake-time of day Reply with quote

Tex, I am reading your book and pertaining to the section of taking Budesonide, it states “take it at the same time everyday, usually the full dose in the morning.”
I am on month 2 of 3mg “twice a day” per the prescription/pharmacy/GI directions. Should I start to take both pills in the morning as your book suggest to get the “shock affect” and maximum dose all at once? I currently take 1 tab in the am and the 2nd tab in the pm as directed. Thanks for the feedback!
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tex
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Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Nov 05, 2017 3:04 pm    Post subject: Reply with quote

Is it working? If so, there's no urgent reason to change. If it's not working, you'll get slightly more effectiveness out of any corticosteroid by taking all of the daily dose first thing in the morning, when the body's natural cortisol level is normally at the highest point of the day. This primarily refers to a therapeutic dose. It's probably not as important for a maintenance dose.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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tcmarv62
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PostPosted: Sun Nov 05, 2017 3:44 pm    Post subject: Reply with quote

I thought it was working, but now seem to be having more bad days than good days during my second month of Budesonide? Sticking to diet, trying to exercise more frequently (very limited due to new back pain issues I’m being tested/treated for.) I would definitely prefer to take my recommended dose all at once, as my work schedule in the field makes it hard to take on a spread out timed bases.
Still not putting on ANY weight after losing 50 lbs over 8 months. My bones are showing and have no muscle tone as I used to. Going to my GP this week for a scheduled physical, as I’m concerned there is something else going on inside that hasn’t been found through several blood, stool and other tests (Endocrinologist, Urologist, MRI’s, cat scans.)
Today I am exausted for no apparent reason, brain fog returning along with depression and lethargy. I felt I was on the road to remission the last month, with 1-2 am normal bowel movements, energy levels returning and feeling fairly ok. Cannot put any weight back on, regardless of what I eat, which has to be sapping my entire body and mind. Sorry to stray from original question of Budesonide frequency, but saw this in your book and thinking Id like to take my 6MG all at once.
Thanks again!
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tex
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Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Nov 05, 2017 6:38 pm    Post subject: Reply with quote

It sounds as though something in your diet is causing you to react. Is there any possibility that your diet could be cross-contaminated with small amounts of gluten, dairy, or soy?

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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tcmarv62
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PostPosted: Mon Nov 06, 2017 11:13 am    Post subject: Reply with quote

I guess it’s a possibility? Will talk to GI about the Enterolab stool testing this week, as I’m from Maryland and they (Enterolab) won’t sell the stool kit to me directly to test for any possible “new” food sensitivities, as I try to go gluten free on foods and what I understand of it in certain foods?
Do you have a “cheat sheet” link for foods that contain Gluten and to avoid?
It’s very hard for my fiancé to wrap her head around this whole new food sensitivity thing when shopping for us, as nothing has ever bothered me in the last 2 months. I’ve been 100% dairy free, have eaten eggs with no side affects, started on going Gluten free a month ago to be safe with no noticeable difference. I’ve ingested soy in one way or another and have eatin Sushi dipped in soy also recently with no side affects. My body needs carbs and protein to function in one way or another, as I keep losing weight! I guess until I get a stool test, I’ll really have no way of telling what my stomach is now possibly sensitivite to, if anything? I can’t afford to miss anymore work this year with a “trail and error” diet.
Thanks again for your replies!
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tex
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Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Nov 06, 2017 11:55 am    Post subject: Reply with quote

Yes, Maryland and New York State won't allow individuals to order any health tests without going through a doctor. But before you pursue any EnteroLab testing, have your doctor rule out selective IgA deficiency. It's a simple blood test. If you should have selective IgA deficiency you might get false negative results on some of the EnteroLab tests.

You can find the various foods and ingredients to avoid in Jean's lists, which are the first 5 posts in the cateqory at the link below:

Foods And Food Ingredients That Should Be Avoided

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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tcmarv62
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PostPosted: Mon Nov 06, 2017 12:54 pm    Post subject: Reply with quote

After doing a brief research/reading on “selective IgA deficiency”, that sounds pretty serious and possibly involves antibiotic treatment long term with no known definite cure?
I get more confused every time I develop another symptom I’ve never had, or heard of until my MC diagnosis. Very depressing Tex. Will speak to my GP this week about this.
No sense in wasting money on a false negative/false positive stool test to throw more confusion in the already confusing path of recovery. Thanks again!
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Mon Nov 06, 2017 12:57 pm    Post subject: Reply with quote

Quote:
It’s very hard for my fiancé to wrap her head around this whole new food sensitivity thing when shopping for us, as nothing has ever bothered me in the last 2 months. I’ve been 100% dairy free, have eaten eggs with no side affects, started on going Gluten free a month ago to be safe with no noticeable difference. I’ve ingested soy in one way or another and have eatin Sushi dipped in soy also recently with no side affects.


please keep in mind that taking the budenside may well be masking the reactions to things like soy eggs etc. You may not be having major symptoms, but it can still be causing inflammation and hindering healing. ongoing inflammation and inhibited healing will impact nutrient absorption and and the bodies ability to gain weight etc.

it also takes up to 6 months for the body to clear gluten antibodies.

are you taking Vit D3 and magnesium?
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"Anything that contradicts experience and logic should be abandoned"
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tcmarv62
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PostPosted: Mon Nov 06, 2017 1:32 pm    Post subject: Reply with quote

Yes, taking Daily Vitamin D and Chelated Magnesium, along with levels of it in my daily Multi-Vitamin and also through a Butyrate Cal/Mag Supplement along with several other vitamins as recommended. From what I’ve now read/researched based on Tex’s statement of an IgA Test, IgA deficiency is no laughing matter and I’m shocked my GP doctor(s), etc have not ordered this critical diagnostic test considering all the weight I’ve lost in the past 9 months with no food reactions to speak of.
So basically an Enterolab stool tests is worthless if I am IgA deficient?
I’m trying/continuing to do ALL the right things to heal, based mainly on Tex’s book, as no one else (all doctors included), have been able to help with my recovery, other than prescribe Budesonide for a 3 month therapy.
Thanks Team!
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Mon Nov 06, 2017 1:47 pm    Post subject: Reply with quote

How much Vit d3, calcium and magnesium are you taking per day.

with the magnesium, read the fine print of the labels of products and look at the ""Elemental Magnesium"" levels in the doses.
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"Anything that contradicts experience and logic should be abandoned"
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tcmarv62
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PostPosted: Mon Nov 06, 2017 2:34 pm    Post subject: Reply with quote

5000 IU of Vitamin D daily, along with a ProNourish drink (not sure of the Chelated Mag IU), but I also do Topical Mag spray every other day, Epsom foot soaks, along with the Magnesium in my multivitamin and in the Butyrate Cal-Mag Supplement, so I find it hard to comprehend I’m deficient in Magnesium, or Vitamin D (other than not getting enough Sun naturally.) Had a full MicroNutrient Vitamin blood work up by SpectreCell out of Texas 2 months ago and was shown to be elevated in Magnesium and B12 and deficient in Oleic Acid, Copper and Insulin.
I will request a “Qauntitive Immunoglobulins” Test by my GP this week.
Thanks for all the quick responses! Very Happy
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tcmarv62
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PostPosted: Mon Nov 06, 2017 2:39 pm    Post subject: Reply with quote

Also Gabe’s, IYO what is the maximum dose of Magnesium, Vitamin D and Calcium I should be ingesting everyday based on the healing prodigal when taking Budesonide?
As always, thanks for all your feedback!
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tex
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2018 Jan 21 - 8:59 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Nov 06, 2017 3:18 pm    Post subject: Reply with quote

One in about 500 people have selective IgA deficiency. It's not a serious issue. The sky is not falling. It's not a disease, and you don't need to treat it. It's the ability of your immune system to produce normal amounts of Immunoglobulin A. Among celiacs the probability is one in about 300. Lots of members here have it. If you have it, the EnteroLab tests might yield some false negative results (but any positive results would be reliable). and the celiac screening blood tests your doctor uses would give false negative results. You may have already had the test. If your doctor tested you for celiac disease he or she probably already checked you for selective IgA deficiency. Your records will show whether or not you had the test.

Tex
_________________
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Maximus74
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Joined: 06 Sep 2017
Posts: 33
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2018 Jan 22 - 12:29 AM


Food Intolerances : Nuts, Gluten, Eggs, Lactose, Corn, Coconut, Soy
Location: Adelaide, Australia

PostPosted: Mon Nov 06, 2017 4:11 pm    Post subject: Reply with quote

Hi TC. I'm in a similar position to yourself where 5 months of diet and budesonide have not resolved he condition. I am seeing an alternate specialist this week to get a second opinion on what might be the cause and will be going down the same path of having the detailed sensitivity testing done to try and identify what might be causing the issue. I am sorry to hear that you have lost so much weight. I have lost 20 lbs and I can only imagine how disconcerting losing 50 lbs must be. I think the hardest thing to come to grips with; for you and your family; is that it's a massive lifestyle change that must be adhered to everyday. Some of the flexibility we had with food is now gone and it's natural for us to want answers right now and feel aggrieved that we have lost something. I hope that you start having more up days and that sooner rather than later, the source of your issue becomes clearer.
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Erica P-G
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2018 Jan 21 - 6:59 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Mon Nov 06, 2017 5:56 pm    Post subject: Reply with quote

Suggestion.....

A really helpful person way back when in 2015 helped me turn the corned when she said 'We are hungry ALL the time....so everytime you are hungry eat a little bit of protein like fresh Turkey, Beef, Chicken"....eat a little protein in all meals this will help with the weight concern, and those amino acids will support the cells.

Until I stopped reacting in my gut I lost weight, and I had fatigue, I was weak, slept alot etc.....little by little making simple no spices bone broth, turning it into a soup, freezing it in portions and eating it every day along with rice and yellow potato and sea salt I have managed to keep all gluten out of my diet and it's finally gone and once that happened I can say I went from 132 pounds back up to 140, this has taken me 2 years to get to this point. My muscles are doing better, and I don't notice fatigue unless I really have a long day.

My point is you have to start somewhere....so minimal supplements VitD3 at least 5000iu (if you don't know your level get it checked - 50-80 is a good range for healing to occur so if you aren't in that range you may need a few months of 10,000 iu to get to that range) and Magnesium minimum 500mg and if you take any medications I suggest Mag intake 5mg per pound of body weight - eat and rotate 2-3 proteins and some carbs - the simpler the diet the faster the healing response your body will have. You will also know if you are reacting to something by the minimal ingredients you are eating, that way you can change something and start a SAFE diet protocol ;-)

Hang in there! You can do this Very Happy
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Dx LC April 2012 had symptoms since Aug 2007
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