Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
Got my EnteroLab Results...Why am I not feeling better?

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Discussions About Enterolab Testing
 View previous topic :: View next topic  
Author Message
GrammyLou
Little Blue Penguin
Little Blue Penguin


Joined: 21 Oct 2017
Posts: 41
User's local time:
2018 Jan 17 - 10:03 PM


Food Intolerances : gluten, soy, dairy, chocolate, almonds, oats, fluoride, just beginning this journey and learning...
Location: Colorado

PostPosted: Fri Nov 10, 2017 11:43 pm    Post subject: Got my EnteroLab Results...Why am I not feeling better? Reply with quote

So my results came back really fast! Specimen received by lab on Nov7 and results posted today, Nov 10. Wow!

I feel like it could have been much worse:

Fecal Anti-gliadin IgA 39 Units
Fecal Anti-casein (cow’s milk) IgA 12 Units
Fecal Anti-ovalbumin (chicken egg) IgA 11 Units
Fecal Anti-soy IgA 24 Units
Mean Value 11 Antigenic Foods 12 Units

No significant reactivity: rice, chicken , pork, tuna, walnut, cashew, white potato
Some reactivity +1: Corn, beef, almond
moderate reactiviy +2: oat
signif reactivity +3: none

I have been diagnosed with LC, but I don't know if my symptoms are typical? It all started back in January when I DID have true diarrhea...things went right through me...for maybe a month? But then it all settled down, and by the time I got my diagnosis (April), I was back to just 1 or 2 bms per day and feeling normal...except that I had "puffy poo". Since I wasn't feeling bad, I stupidly just ignored the diagnosis and the puffy poo and went about my normal life. My GI doc recommended a low FODMAP diet, which I didn't really adhere to since I felt okay. But then around September I started having bad stomach cramping, usually late in the day, so that I often slept with a heating pad on my stomach. That's when I decided to find out more about this mysterious LC diagnosis...which led me to this forum.
I have been 100% gluten and dairy free since Oct 25th...at least as far as I know, unless I'm missing something. That seems to have helped, since I haven't needed the heating pad anymore. I was still getting some cramping and lots of nausea, however, so I continued to research. I did 3 days of nothing but chicken, potatoes, and bananas, and was feeling better, so started trying to add other things, but again had lots of nausea and woozy-head feeling. Then I read about the Specific Carbohydrate Diet (SCD) and decided to cut all grains and potatoes. That seemed to help. I'm thinking it might be soy that was getting me. I was snacking on dry Rice Krispies and Rice Chex, which I see now both probably contain soy.
I was so disappointed to see my soy number come back high, because that, to me is the most difficult thing to avoid. It is hidden everywhere :(
So I guess I'm just wondering if it is typical to take weeks before you start to feel better? Or maybe I am just not being strict enough - yet at the same time, I'm afraid of not getting proper nutrients by eating too restrictive of a diet for too long. Today I actually felt great for most of the day. But now this evening, some cramps and "woozy head". The only things I ate were a fermented pickle (ingred: cucumber, water, salt, garlic, spices). I thought it sounded safe and that the probiotics would be good for me. I have been taking Culturelle and I do think the probiotics make me feel better...hard to tell for sure though, with so many other factors. The other thing I ate that might be questionable was a vitamin with corn starch. Ugh, this is not an easy road! And I don't feel like my numbers on the Enterolab test were that bad compared to many of the others I have seen here. I thought cutting out all the junk food would fix me right up. Ha. Not so easy :(
Back to top
Pam V
Adélie Penguin
Adélie Penguin


Joined: 11 Jun 2017
Posts: 110
User's local time:
2018 Jan 17 - 11:03 PM


Food Intolerances : Gluten, Casein, Soy and Egg
Location: Boston, MA

PostPosted: Sat Nov 11, 2017 12:49 pm    Post subject: Reply with quote

Hi Lou, I’m sure others who are more knowledgeable than I will chime in but here’s my thoughts.

I think when you are not feeling well, it’s best to not vary your diet too much ~ rice, potato, sweet potato and protein. From what I understand, protein is key. I’m just starting to add veggies back and will eat broccoli, green beans, squash. I even have had some lettuce, no dressing. I think that until things calm down, your body isn’t absorbing all the nutrients of the food anyway so don’t be too concerned with your nutrition. And I think it’s the B vitamins that help with brain fog. It takes awhile for that to lift so get plenty of rest and try to be gentle with yourself.

Hang in there!!!
Pam
_________________
Rivers know this: there is no hurry. We shall get there some day.”
― A.A. Milne, Winnie-the-Pooh
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30998
User's local time:
2018 Jan 17 - 10:03 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Nov 11, 2017 4:21 pm    Post subject: Reply with quote

Hi Lou,

Pam is right — forget about nutrition until after your gut has done some healing. Heal first (to stop the inflammation), and balance your diet after you have reached remission and partially healed . Soy is a major problem. But if they still contain barley malt, Rice Krispies contain gluten. Avoid spicy foods. Your food is now your medicine, so you're no longer eating for fun — you're eating to heal.

You'll probably be in recovery for 3 to 6 months, maybe longer. You'll have good days and bad days, but you should slowly improve. Once you reach remission, it will probably take another 2 to 3 years for your gut to finish healing. Then all the remaining brain fog and fatigue will fade away. Yep, this is a tough, cruel disease, but we learn to adapt our lifestyle as we develop a new normal.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7339
User's local time:
2018 Jan 18 - 2:03 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Nov 11, 2017 8:31 pm    Post subject: Reply with quote

Hi there Lou
i know that it is all very overwhelming at first.

to expand on what Tex and Pam have put above, main focus for now is healing so that you can absorb nutrients.
and you may be surprised by the nutritional value of the bland, minimal ingredients eating plan.

I would encourage you to avoid ferments for now, and any products with garlic/spices etc
stick with safe proteins, safe veges as per what we suggest in the guidelines to recovery eating plan
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=22328
Protein is key to this stage of the healing journey...

with the high soy result I would also avoid heavy use of moisterisers, facial products, lipsticks, lipbalms etc anything with Vit E in it, as this will be high with soy.

Also - be patient... healing takes time.
It takes weeks and months not days for your body to clear things like gluten antibodies etc and only with continued bland low inflammation (low triggers etc) eating plan, lifestyle plan, along with good amounts of Vit D3 and magnesium will the body heal.
we encourage people to avoid adding any additional ingredients for as long as possible.

hope this helps
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Discussions About Enterolab Testing All times are GMT - 6 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright © 2005–2017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery