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Doctor in Boston?

 
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Lisa_D

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PostPosted: Sat Nov 18, 2017 2:08 pm    Post subject: Doctor in Boston? Reply with quote

Hi Everyone,

I was diagnosed with MC about a month ago and I'm looking for a doctor who can be helpful in treating this in Boston, MA. Does anyone have any recommendations?

Thank you in advance!!

All the Best,
Lisa
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Nov 18, 2017 3:36 pm    Post subject: Reply with quote

we have a couple of members that have seen a good Gi in that area Dr Ngari i think his name is

the members are not as active in the forum so maybe contact them via Private Message joefnh and Nancyl are two that come to mind.
if you use the search function and use words like Boston you will also find previous discussions

hope this helps
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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Lisa_D

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PostPosted: Sat Nov 18, 2017 5:41 pm    Post subject: Reply with quote

Thank you! I just wrote a quick PM to Nancy. I've been searching the forums but have been unable to find what I need. I'm sure I'll hear back from someone soon.

Thanks!
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Nov 18, 2017 6:04 pm    Post subject: Reply with quote

using just the search word boston
found this info pretty quickly



Tex I have been going to Dr Nagri in Nashua NH


Dartmouth Gastroenterology: Nagri Srikrishna MD
21 East Hollis Street, Nashua, NH 03060-2928
603-577-4081
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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Pam V
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Food Intolerances : Gluten, Casein, Soy and Egg
Location: Boston, MA

PostPosted: Sat Nov 18, 2017 6:26 pm    Post subject: Reply with quote

Hi Lisa (and Gabes:),

I’m interested in hearing about GI’s in the Boston area. I took a look at the websites of the teaching hospitals in Boston as I thought it might be a good idea to talk with another GI. I was sad to see that MC is hardly mentioned at most hospitals. I didn’t pursue finding another GI as my diet changes and vitamin supplements were giving me good results. I’d love to hear about your experiences though and wish you all the best.

Best wishes to you ~
Pam
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Rivers know this: there is no hurry. We shall get there some day.”
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Lisa_D

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PostPosted: Sun Nov 19, 2017 6:44 pm    Post subject: Reply with quote

Thanks, Gabes! Yes, Nancy wrote back and that was the MD she recommended. Unfortunately Nashua is a bit far for me for regular apts, although I could go for a consult if needed.

I have been been searching the boards and came across a Dr. Mathew Hamilton that previous posters seemed to like a lot. He's at Brigham and Womens, which is thankfully very close to me. I am going to call this week and see if it's possible to get a second opinion there (I image the wait will be rather long).

Pam: I will keep you posted. I have a note into my PCP as well to get some recommendations.
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Pam V
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Food Intolerances : Gluten, Casein, Soy and Egg
Location: Boston, MA

PostPosted: Mon Nov 20, 2017 7:53 am    Post subject: Reply with quote

Good Luck, Lisa! I hope that he turns out to be helpful.

From your first post, it looks like you're fairly new in this MC journey. I was (and am) very frustrated by the lack of resources that seem to be available in the general medical community when it comes to MC....the belief that it "comes and goes". I don't know where I would be without this wonderful forum and the advice that has helped me so much. Changing my diet has been key to my recovery. I'm six months into this and am seeing Norman more often than not, expanding my diet, and have seen the brain fog lift. While it would be helpful to have a GI that supports the notion that diet/food sensitivities, etc. play a key part in this disease, it has been possible to see significant improvement without their help.

I made oatmeal for my husband this morning and wanted some in the worst way. Last night, I made chili for the family. As much as I miss those foods, nothing compares to feeling well. I'm actually at the point where I think I've made peace with things and am grateful for all the wonderful foods that I can eat.

I wish you all the best and look forward to hearing about your visit at B and W. It is wonderful hospital and if anyplace were to have someone to look at MC in a different light, I believe it would be them.

Good luck!!!

Pam
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tex
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Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Nov 20, 2017 8:35 am    Post subject: Reply with quote

Brigham and Women's Hospital is the leading facility in the U. S. for MC patients and others who have Mast Cell Activation Disorder (MCAD), mastocytosis, or other mast cell issues that affect the digestive system and other organs. As far as I am aware, Dr. Maria Castells there has trained every current expert on these issues in the country, and many have established practices in various parts of the country, mostly in the East.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Marty828

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PostPosted: Mon Nov 20, 2017 9:59 am    Post subject: Doctor in Boston Reply with quote

Lisa

I see Dr. Sunil Sheth at Beth Israel Deaconess and am very pleased with him. He was the one who finally, after many years of being told by others that it was just nerves, diagnosed my MC. Dr. Sheth is also the only one of my Drs. that will call me back directly if I am having issues. I have never once had to go through a nurse or other office personnel, either he himself or one of his fellows (he is professor of medicine at Harvard) will call me back.

Wish you the best in your search.

Martha
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Lisa_D

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PostPosted: Mon Nov 20, 2017 1:27 pm    Post subject: Reply with quote

Thanks, All! I spoke to someone at Brigham's this morning and faxed over all my medical records (at their request in order to match me with the best doctor). I feel fortunate to live so close to such a great center. Will keep you posted. I sincerely appreciate all the help!
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Lisa_D

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PostPosted: Mon Nov 20, 2017 8:36 pm    Post subject: Reply with quote

I just wanted to follow up for anyone who is Boston area. I have an apt with Dr. Joshua Krozenik in a few weeks at Brigham and Womens. My primary care recommended him and it was fastest to get an apt with him. I don't believe I have any symptoms of mast cell disorder, so I will start with him.

My primary care also noted that there is a program at Mass General dedicated to Microscopic Colitis (see link below). She thought that Mass General would be a longer wait for an apt. Also based on the good reviews here of Brigham, I decided to book at Brigham.

I was originally diagnosed by a supposedly top doctor at Tufts, who was at least quickly able to pinpoint the problem and give me a diagnosis. However, based on follow-up apts my primary and I both agree that I may need another GI for treatment and management. Feel like I'm completing a tour of Boston hospitals -- phew! :)

Here's the Mass General Link:
http://www.massgeneral.org/gastroenterology/ser...rams.aspx?id=1737

Thanks for all the input and support!
Lisa
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brandy
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Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Mon Nov 20, 2017 11:16 pm    Post subject: Reply with quote

Lisa, thanks for posting the site. It is good for folks to know about Brigham.
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Pam V
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Food Intolerances : Gluten, Casein, Soy and Egg
Location: Boston, MA

PostPosted: Tue Nov 21, 2017 4:05 am    Post subject: Reply with quote

Lisa,

Definitely please keep us posted. I am suppose to f/u in January with my GI in the MetroWest suburbs of Boston and have been dragging my feet about making the appointment. It’s good to know there may be better options an hour away. Martha, I had noticed that BI’s website seemed to have more info regarding MC than the other medical centers. It’s good to hear of your good experiences there!!

Pam
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Rivers know this: there is no hurry. We shall get there some day.”
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Lisa_D

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PostPosted: Sat Jan 13, 2018 8:28 am    Post subject: Reply with quote

Hi All,

I wanted to update. I met with Dr. Joshua Krozenik and his team last week at Brigham and Women's. He's the director of the Chron's and Colitis program and I would recommend him for anyone looking for another opinion! I had a great experience and would be happy to discuss in more detail with anyone over PM.

A few things we discussed:
--Connection between microscopic colitis and SSRIs
--Supplements (He suggested adding Boswellia and Tumeric and increasing my Magnesium and Vitamin D)
--Possibility of mast cell connection (I have a family history of mast cell activation disorder)
--Alternative treatments (in my case, acupuncture)

He wasn't as well versed as I would have liked in nutrition (who ever is?) but we openly discussed nutrition and a nutritionist immediately reached out to me to schedule a follow-up appointment.

Overall, was a positive experience. Would recommend if you're in the Boston area. Hope that helps!
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