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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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Pebbledash
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2018 Jan 21 - 8:18 PM




PostPosted: Sat Dec 09, 2017 6:00 pm    Post subject: Reply with quote

If budesonide works so effectively, but, once off it, symptoms return, this begs the question for me: what other, more natural remedy, might mimic the physiological effects of budesonide?

And can I stop the inflammation in the first place? Do I need to avoid all stress? How?
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Dec 09, 2017 6:43 pm    Post subject: Reply with quote

we cant avoid all stress, but we can minimise it, and minimise the impact it has on our bodies.

how do you reduce /manage the inflammation??
- stick with bland low amount of ingredients 'low inflammation gut healing eating plan' sticking with this type of eating plan means that we have more 'energy' (less inflammation) to deal with external stress and events out of our control
- budget/manage stress what most of us have learnt is that we have a limited bank of emotional, mental and physical energies. we have to manage these. ie give up perfectionism, put our needs first - guilt free,
- do relaxation activites that help relax the body (and optimise healing) things like meditation, yoga, breathing exercises. there are guided breathing excercise tracks that you can do during the day (breaks at work etc)
- take the right supplements that supports our adrenals (the stress mgt system of our bodies) and help lower inflammation in the body

information about all of these topics are in our guidelines to recovery section..
http://perskyfarms.com/phpBB2/viewforum.php?f=79
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"Anything that contradicts experience and logic should be abandoned"
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Pebbledash
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PostPosted: Sat Dec 09, 2017 7:56 pm    Post subject: Reply with quote

The bit about "giving up perfectionism, putting our needs first, guilt-free" rings so true to me.

I am trying to take back control. In my worklife, I feel I have been walked all over, lost confidence.

The big thing for me is not so much saying "No" but to not feel guilty about it. That's what i am working on.
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Pebbledash
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PostPosted: Sat Dec 09, 2017 7:57 pm    Post subject: Reply with quote

. . . oh, and to stop seeking approval from others.
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tex
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Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Dec 09, 2017 10:29 pm    Post subject: Reply with quote

Yes we are all over-achievers and perfectionists or control freaks. We have to learn to tone down our style a bit, rearrange our priorities, and give our body a break so that it can heal. If we feel that our life, or our job, is beyond our control, that imposes the worst type of stress.

Budesonide (and all corticosteroids) work by suppressing mast cell activity and numbers. Therefore, probably the closest thing to corticosteroids is antihistamines. Antihistamines don't suppress mast cells, but they do prevent the histamine (that mast cells release) from attaching to receptors to complete the inflammatory response. So antihistamines suppress/prevent inflammation. They aren't quite as good as corticosteroids, because they can't stop the other proinflammatory agents (such as cytokines) released by mast cells, but sometimes that's not necessary. Taking an antihistamine each day may be enough to bring remission, when we just need a little extra boost.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Pebbledash
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PostPosted: Sun Dec 10, 2017 2:32 pm    Post subject: Reply with quote

Is there an alternative to Budesonide?

I'm sorry to throw out so many questions--just pretty desperate right now. Quite ill with return of MC big time. Stressed over the possibilities of neuropathy or MS. Lost a lot of confidence.
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Tor
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Food Intolerances : Gluten, Coffee, Tea, Aspartame

PostPosted: Sun Dec 10, 2017 4:59 pm    Post subject: Reply with quote

I’ve had good experience with cholestyramine as an alternative to budesonide, and so has several others here. If you search, you should find several threads about it here.

— Tor
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sun Dec 10, 2017 5:07 pm    Post subject: Reply with quote

There is a list of medication options in the guidelines to recovery section

http://perskyfarms.com/phpBB2/viewforum.php?f=79
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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Pebbledash
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PostPosted: Sun Dec 10, 2017 5:19 pm    Post subject: Reply with quote

Tor wrote:
I’ve had good experience with cholestyramine as an alternative to budesonide, and so has several others here. If you search, you should find several threads about it here.

— Tor


Interesting. I'll ask my new gastroenterologist about this. From initial reading, it doesn't seem to have side-effects. Budesonide was wonderful, but nervous about going back on it given my current predicament of unresolved paresthesia.
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Tor
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Food Intolerances : Gluten, Coffee, Tea, Aspartame

PostPosted: Mon Dec 11, 2017 4:05 am    Post subject: Reply with quote

This article makes for good reading about why cholestyramine often is effective in MC: https://www.ncbi.nlm.nih.gov/pubmed/10644309

As far as I know, the main side effects are lower cholesterol levels (that's why it was made in the first place) and constipation (not a problem for most people with MC). Not all people can handle the taste. Cholestyramine can bind drugs, vitamins, minerals and stuff your body needs. Drug should be taken 1 hour prior to the cholestyramine or 4 hours later. It might be wise to take vitamin and mineral supplements while on cholestyramine.

Bile often contributes to the D. in MC, but cholestyramine might bind more than bile, drugs, vitamins and minerals, for example allergens and bacteria. It aslo slows down the motility of the intestines. These things might explain why it often works for people without excess bile in the colon. It even works for a lot of people with "IBS": https://www.ncbi.nlm.nih.gov/pubmed/24727487

--Tor
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Pebbledash
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PostPosted: Mon Dec 11, 2017 12:36 pm    Post subject: Reply with quote

How long does a course of cholestyramine usually last?
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Tor
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Food Intolerances : Gluten, Coffee, Tea, Aspartame

PostPosted: Mon Dec 11, 2017 12:48 pm    Post subject: Reply with quote

Pebbledash wrote:
How long does a course of cholestyramine usually last?


I took it for 2.5 years until I figured out all my main triggers. I started with 4 packets of cholestyramine but reduced it to one packet before I quit. I think the combo of gradual healing of the gut and figuring out all my main triggers did the trick together.

But I don’t think there is a defintive time limit for using cholestyramine. To me it seems to be a much less troublesome drug for long term use than steroids.

— Tor
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Pebbledash
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PostPosted: Mon Dec 11, 2017 1:14 pm    Post subject: Reply with quote

Tor wrote:
Pebbledash wrote:
How long does a course of cholestyramine usually last?


I took it for 2.5 years until I figured out all my main triggers. I started with 4 packets of cholestyramine but reduced it to one packet before I quit. I think the combo of gradual healing of the gut and figuring out all my main triggers did the trick together.

But I don’t think there is a defintive time limit for using cholestyramine. To me it seems to be a much less troublesome drug for long term use than steroids.

— Tor


Thanks, Tor. That is encouraging. I found that only one budesonide a day was sufficient for me, so perhaps I could just have one packet of cholestryramine a day.

As I said, budesonide worked wonders for me, but I am scared to go back on it because I associate it (probably wrongly) with the paresthesia that has been traumatic for me.

Will cholestryamine inadvertently lower my cholesterol? That might be a problem since mt cholesterol is already lowish.
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Tor
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Food Intolerances : Gluten, Coffee, Tea, Aspartame

PostPosted: Mon Dec 11, 2017 1:23 pm    Post subject: Reply with quote

Quote:

Will cholestryamine inadvertently lower my cholesterol? That might be a problem since mt cholesterol is already lowish


Yes, cholestyramine was made for lowering cholesterol. Slowing down intestinal transit times is the main side effect. But one packet will not be much, and the effect of cholestyramine is much less than of statins.

—Tor
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Pebbledash
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PostPosted: Mon Dec 11, 2017 1:52 pm    Post subject: Reply with quote

Tor wrote:
Quote:

Will cholestryamine inadvertently lower my cholesterol? That might be a problem since mt cholesterol is already lowish


Yes, cholestyramine was made for lowering cholesterol. Slowing down intestinal transit times is the main side effect. But one packet will not be much, and the effect of cholestyramine is much less than of statins.

—Tor


Are there any well-established side-effects?
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