Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
tomato weirdness

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Main Message Board
 View previous topic :: View next topic  
Author Message
Jael

unknown IP

Joined: 24 Aug 2007

Posts: 4
User's local time:
2017 Nov 21 - 12:47 PM




PostPosted: Fri Aug 24, 2007 8:55 pm    Post subject: tomato weirdness Reply with quote

Glad to stumble upon this site. You folks seem to know more about food intolerances/allergies than any other forum I've yet seen. Had never heard of m. colitis before as well. I don't visit M.D.s nor have I a definitive diagnosis but just wanted to pass this strange little story about my tomato experiences just in the off-chance that this will ring a bell for someone else.

A long story made short: About 20 yrs. back my diet as a student wasn't the best, so resorted to lots of cheap baked bean tins, bought tons of pasta and pasta sauce. In short, a diet filled with concentrated tomato sauce (albeit cooked). Over time, the skin in my mouth and "the other end" disappeared. My stools looked like a grease spot and smelled worse. Further, started having markedly increased, horrendously vivid hypnapompic hallucinations (sorry for the technical stuff...these are hallucinations that occur on waking from a sound sleep. In essence, REM dreams while awake. Not a pleasant experience). Anyway, I consulted a doc who basically was clueless and thought I must be nuts. Be that as it may, I started experimenting with food elimination and wha-lah, after dropping all tomato products for one week, tested my theorem and indulged in a bowl of pasta heavy on the tomato sauce. Within 15 min. of ingesting it, I had a very unpleasant sensation known as "a feeling of doom" i.e. thought I would die. It passed after a few minutes and I felt unwell for a few hours. Well, I got my answer...my body is NOT fond of tomatoes, particularly concentrated sauces such as barbeque sauce and pasta sauces. Fresh tomatoes however...no problem. I stopped all tomato products for almost 3 yrs. (not easy to do). My skin returned to normal within a few months, the bowels returned to normal and the hallucinations all but stopped. I gradually reintroduced some tomato products with no problems.

Ok...jumping to "today" at age 47 vs. 27, I started having GI problems with bloating, trouble getting in a full breath, nervousness and some incredible weirdness that made me think I was losing my mind.

Here's the Scenario:
Going along happily at home or work, then *suddenly* my sense of smell increases very sharply, my hearing is muffled and all this followed immediately by a sensation that my stomach and bowels have been jolted like what you all have experienced when an elevator drops. Then, light-headedness, knee-weakness and that "sensation of doom". It only lasts a few seconds but happens several times a day. Very nerve-wracking and destroys concentration. Makes the hair stand up on my neck. And get this...when the smell hallucination starts, and if someone is speaking, I can "foretell" exactly what will come out of their mouth before they say it (I'm a scientific sort so this has me totally weirded out).

Well guess what. It's the tomato again. I'd forgotten (ok, how dumb) about the episodes 20 yrs. earlier and had been bringing in pasta tins rich with tomato paste to work for months. So basically I was eating this stuff 5 to 6 days per week. I've since recognized the problem and stopped ALL tomato (and potato) for good this time. Hopefully, this will take care of it.

I am most surprised however that this food effected me neurologically. Anyone else ever have any weirdness like this before?? I can't consult an M.D. because they'd think I'm just nuts and after all I can "cure" this myself (thankfully). Sorry to make this so long...just really no one else out there who can vaguely understand this. Any insights or experiences from the neurologic side would be great.

Shocked
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30720
User's local time:
2017 Nov 21 - 11:47 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Aug 24, 2007 9:25 pm    Post subject: Reply with quote

Hi Jael,

and welcome to our discussion board.

I'm going to move your post to the main discussion forum, (the Main Message Board), so that more members will see it. It's easy to overlook a post in this forum, since it is not often posted to.

You have a very interesting relationship with tomatoes. Some members here do have problems with tomatoes, though not necessarily in the way they affect you. I'm curious to see if anyone else has had any similar experiences.

Tex
Back to top
Jael

unknown IP

Joined: 24 Aug 2007

Posts: 4
User's local time:
2017 Nov 21 - 12:47 PM




PostPosted: Fri Aug 24, 2007 9:56 pm    Post subject: Reply with quote

Thanks Tex,

you know best.
Back to top
starfire
Moderator
Moderator


Joined: 25 May 2005

Posts: 5164
User's local time:
2017 Nov 21 - 12:47 PM


Food Intolerances : Gluten, Soy
Location: Pennsylvania

PostPosted: Sat Aug 25, 2007 10:57 am    Post subject: Reply with quote

Wow, that is really extreme!! I don't know what to make of it all but perhaps some others will have some ideas/opinions.

Welcome to the board.

Shirley
_________________
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
Back to top
Jael

unknown IP

Joined: 24 Aug 2007

Posts: 4
User's local time:
2017 Nov 21 - 12:47 PM




PostPosted: Sat Aug 25, 2007 11:58 am    Post subject: Reply with quote

Thanks Shirley,

Know my "case" is bizarre so I don't expect much input, but
it's nice to get it off my chest so to speak. Don't know if any
docs browse through this forum either and if any have heard
of this.

jael
Back to top
hazel
Rockhopper Penguin
Rockhopper Penguin


Joined: 21 Jun 2005

Posts: 1032
User's local time:
2017 Nov 21 - 12:47 PM



Location: OH

PostPosted: Sat Aug 25, 2007 5:03 pm    Post subject: Reply with quote

Glad you've got control of your symptoms! I have a friend who gets a form of eczema on the palms of her hands and soles of her feet if she eats too many tomatoes. Prior to reading your post, that's the only strange reaction I'd heard of.
_________________
kathy
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30720
User's local time:
2017 Nov 21 - 11:47 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Aug 25, 2007 5:03 pm    Post subject: Reply with quote

Jael,

Actually, a couple of our members are MDs, (they have MC), though only one is still active on the board, but I've occasionally noticed that a few of the "guests" browsing this site have IP addresses from various medical centers, hospitals, and university medical research facilities, so maybe someone will notice your post, and take an interest in it. One never knows who is reading articles, on the internet.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
annie oakley
King Penguin
King Penguin
United States

Joined: 13 May 2011

Posts: 3863
User's local time:
2017 Nov 21 - 11:47 AM


Food Intolerances : spice

PostPosted: Sun Aug 26, 2007 8:36 am    Post subject: Reply with quote

I don't call it wierd...I grew up with a phsyic mother and she passed alot down to us kids all different ways. So when things happen to me 3/4 of the time they are related to those things passed down. I often experience smell sensations but I don't think they are linked to any certain food, but I could be wrong. you have me intriqued and I may do a study of that on me. My brother has different sensations than my sister and I do....and there are different abilities that were passed down. When ever I have a smell sensation I try figure out what I did that day to bring it on, But I also find the more I meditate, I just accept it. I don't have the ear muffling all the time, only once or twice a month. I get dizzy but I think it has to do with healt or something in my ear, but heck who knows? I sometimes can tell when the phone will ring but ususally cannot tell what people are going to say, sometimes between waking and sleeping I will have a premination of thing that are going to happen, that to me is a bit scarey, because they happen, but not as scarey as the feelings I get sometimes from touching someone new such as a handshake. Hope it all works out Maybe you need to do a food study. Oma
_________________
May I be more compassionate and loving than yeterday*and be able to spot the idiots in advance
Back to top
Jael

unknown IP

Joined: 24 Aug 2007

Posts: 4
User's local time:
2017 Nov 21 - 12:47 PM




PostPosted: Tue Sep 04, 2007 10:36 pm    Post subject: Reply with quote

Thanks for the comments from all and for your concern.
I've behaved and cut out all nightshades from the diet (not easy but doable). My olfactory hallucinations/panic/weird sensations have increased unfortunately, so don't think this is diet related. Had really hoped it was, since that's pretty simple to fix.

Am probably going to break down and get an M.D. to order some thyroid tests, an EEG and maybe an MRI (brain) to rule out temporal lobe epilepsy, panic disorder (I admit it, am a neurotic individual with a rather stressful job) or possibly to catch changes in the brain geography. A few months back DID have a minor stroke due to an inherited disorder of the vessels (hereditary hemorrhagic telangiectases). This was a total surprise since I'm in very good shape and fairly young (47) and I had no residual damage (supposedly). I'm getting very worn down by these crazy daily episodes though so do need some answers soon. Will keep all posted when I get some answers. Thanks again folks!

jael Wink
Back to top
Dreambeanie

Canada

Joined: 27 Jan 2014

Posts: 8
User's local time:
2017 Nov 21 - 9:47 AM


Food Intolerances : Dairy, tomatoes, citrus fruit,chocolate, histamine foods

PostPosted: Fri Apr 11, 2014 4:08 pm    Post subject: Tomatoes Reply with quote

I am very sensitive to tomatoes in any form, tho not getting any of your unusual symptoms. I've thought the problem is the high acid content of tomatoes, but you,ve got me wondering now!
Good luck
,[/url]
Back to top
brendaragland

unknown IP

Joined: 04 Jun 2016

Posts: 16
User's local time:
2017 Nov 21 - 12:47 PM


Food Intolerances : Gluten, dairy, soy, veggies, fruits, fodmaps, spices,sugar, nightshade plants, artificial dyes and flavorings

PostPosted: Sat Aug 20, 2016 10:21 am    Post subject: Reply with quote

I'll add myself to this list of intolerance for nightshade plants. Haven't attempted fresh tomatoes but I'll have to give it a try. Thanks for the heads up
_________________
Brenda Ragland
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30720
User's local time:
2017 Nov 21 - 11:47 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Aug 20, 2016 11:01 am    Post subject: Reply with quote

Jael wrote:
Am probably going to break down and get an M.D. to order some thyroid tests, an EEG and maybe an MRI (brain) to rule out temporal lobe epilepsy, panic disorder (I admit it, am a neurotic individual with a rather stressful job) or possibly to catch changes in the brain geography. A few months back DID have a minor stroke due to an inherited disorder of the vessels (hereditary hemorrhagic telangiectases). This was a total surprise since I'm in very good shape and fairly young (47) and I had no residual damage (supposedly). I'm getting very worn down by these crazy daily episodes though so do need some answers soon. Will keep all posted when I get some answers.


9 years ago we didn't know any better. But now we would recognize these neurological symptoms as associated with chronic magnesium deficiency.

Been there, done that. I had a couple of TIAs 6 and 7 years ago that I'm pretty sure were a result of accumulated neurological damage due to years of untreated gluten sensitivity (prior to 2002) and a chronic magnesium deficiency.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Main Message Board All times are GMT - 6 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright 20052017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery